Looks like Randy and Barbara are living proof that TM, or whatever, is still not understood very well. Seems strange that they follow the symptoms for a while and then change some, but then isn't that what TM does? I am certainly not the same as I was when TM hit - yet I still follow the symptoms, a couple added and a couple disappeared. What a situation it puts us in, but at least we all have each other. Can't tell you what a difference it made to discover this website. Thanks guys. Janice
From: Barbara Alma Sent: Saturday, February 13, 2010 11:39 PM To: rj_ran...@yahoo.com ; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Hi Randy and all TMIC, I am another one who was originally told that I had TM and am now being told that I don't, and that's by the same doctor and another as well. I've never been talked to about MS though. I had only one attack, was paralyzed from waist to toes within 15 minutes, at lesion T8-10. I even went to 2 different hospitals, as I wanted a second opinion, both with a TM diagnosis. After about 3 yrs I was told by my first Neuro, who became my treating Neuro that I didn't have TM. He didn't know what caused the paralysis and no other information as to why. Not a spinal infarction or stroke, or anything else. I had trouble with my disability claim and he was the cause so I changed Neuro's a few of years later and she had MRI's done and told me the same thing. MRI's have come a long way and the lesion is not there any longer and they can't see any cause, like a bleed or anything. She looked for evidence of a bleed because she wanted to rule out the possibility of it happening again and couldn't find it. So guys, since I've had 2 Neuro's both tell me that I don't have TM, I really don't care. I'm sticking with it, and you are just stuck with me. I'm happy here, I get the support that I need, I give it when I can, and I'm not going anywhere. I really don't know what caused my problems, and I really don't care at this point. It is what it is. I've had this crap for over 10 years and it's not going away. I had TM symptoms and that's where I started, so I'm sticking with it. Hugs, Barbara A in Auburn CA -----Original Message----- From: rj_ran...@yahoo.com To: Grace M. <grace...@gmail.com> Cc: Janice Nichols <jan...@centurytel.net>; tmic-list@eskimo.com Sent: Sat, Feb 13, 2010 1:18 pm Subject: Re: [TMIC] TM and Pilates Janice its ok. I've actually been wondering if I should stay. I feel very awkward these days. I've been told more than once that I had all the "textbook" signs for ms and I did loose my left foot followed by my right leg then my bladder was told I had tm and went through the most unbelievable facial pain. Had several doc all with different ideas and one that got me on my feet and another that got me in pt and walking again I've been hospitalized 4 times and now suddenly I am told that I don't have ms and show no signs of tm. I pray to God nothing comes back. I spent an entire summer pushing myself on a tread mill trying to rebuild my strenght but that was after the years of trying to cross my legs and do odd excercises on the bed floor and chair that the pt taught me. It sure has been a mentally brain warping experience. Tx grace for calling me fam. This is a great group of people and have helped me get through a lot of challenges as well as put up with my venting from time to time. I think we all have to vent. ------Original Message------ From: Grace M. To: rj_ran...@yahoo.com Cc: Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:26 PM Randy, You're like family here at the site and have a lot of good input to offer. I think that you and I came around the same time. Janice, we don't have to currently be ill in order to participate here. ALL are welcome. It's not an exclusive club. Respectfully, Grace Sent from my Verizon Wireless BlackBerry
