I still have all the same symptoms, they haven't changed. Initially as my body sort of "woke up" as I say, I went gradually from having no pain or feeling to having more and more pain. I still have decreased sensation in some areas and hyper or hypo sensation and pain in others. I have B/B issues too. As time goes on my symptoms still don't really change. My symptoms are so much like so many others here and that's the reason that I stay. I think this may be relative to the fact of it being spinal cord injury, not sure. Maybe injury is injury, and the effects of it remains the same depending upon where on the cord the injury happens. But, I may be over simplifying things. I am very pleased to say though, and this is extremely important to me, that when I do slack off on my exercises and notice my body getting weaker, it does bounce back when I get back into an exercise routine again. I generally stop doing my exercises when I get sick and need all the energy and strength just to get around the house and to the bathroom. And at that point I really weaken. I know this happens to many of you. If I have the flu or any infection, it is really hard on my body.
Hugs, Barbara A in Auburn CA -----Original Message----- From: Janice Nichols <jan...@centurytel.net> To: rj_ran...@yahoo.com; tmic-list@eskimo.com; Barbara Alma <balmat...@aol.com> Sent: Sun, Feb 14, 2010 9:23 am Subject: Re: [TMIC] TM and Pilates Looks like Randy and Barbara are living proof that TM, or whatever, is still not understood very well. Seems strange that they follow the symptoms for a while and then change some, but then isn't that what TM does? I am certainly not the same as I was when TM hit - yet I still follow the symptoms, a couple added and a couple disappeared. What a situation it puts us in, but at least we all have each other. Can't tell you what a difference it made to discover this website. Thanks guys. Janice From: Barbara Alma Sent: Saturday, February 13, 2010 11:39 PM To: rj_ran...@yahoo.com ; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Hi Randy and all TMIC, I am another one who was originally told that I had TM and am now being told that I don't, and that's by the same doctor and another as well. I've never been talked to about MS though. I had only one attack, was paralyzed from waist to toes within 15 minutes, at lesion T8-10. I even went to 2 different hospitals, as I wanted a second opinion, both with a TM diagnosis. After about 3 yrs I was told by my first Neuro, who became my treating Neuro that I didn't have TM. He didn't know what caused the paralysis and no other information as to why. Not a spinal infarction or stroke, or anything else. I had trouble with my disability claim and he was the cause so I changed Neuro's a few of years later and she had MRI's done and told me the same thing. MRI's have come a long way and the lesion is not there any longer and they can't see any cause, like a bleed or anything. She looked for evidence of a bleed because she wanted to rule out the possibility of it happening again and couldn't find it. So guys, since I've had 2 Neuro's both tell me that I don't have TM, I really don't care. I'm sticking with it, and you are just stuck with me. I'm happy here, I get the support that I need, I give it when I can, and I'm not going anywhere. I really don't know what caused my problems, and I really don't care at this point. It is what it is. I've had this crap for over 10 years and it's not going away. I had TM symptoms and that's where I started, so I'm sticking with it. Hugs, Barbara A in Auburn CA -----Original Message----- From: rj_ran...@yahoo.com To: Grace M. <grace...@gmail.com> Cc: Janice Nichols <jan...@centurytel.net>; tmic-list@eskimo.com Sent: Sat, Feb 13, 2010 1:18 pm Subject: Re: [TMIC] TM and Pilates Janice its ok. I've actually been wondering if I should stay. I feel very wkward these days. I've been told more than once that I had all the "textbook" igns for ms and I did loose my left foot followed by my right leg then my ladder was told I had tm and went through the most unbelievable facial pain. ad several doc all with different ideas and one that got me on my feet and nother that got me in pt and walking again I've been hospitalized 4 times and ow suddenly I am told that I don't have ms and show no signs of tm. I pray to od nothing comes back. I spent an entire summer pushing myself on a tread mill rying to rebuild my strenght but that was after the years of trying to cross my egs and do odd excercises on the bed floor and chair that the pt taught me. It ure has been a mentally brain warping experience. Tx grace for calling me fam. his is a great group of people and have helped me get through a lot of hallenges as well as put up with my venting from time to time. I think we all ave to vent. -----Original Message------ rom: Grace M. o: rj_ran...@yahoo.com c: Janice Nichols c: tmic-list@eskimo.com ubject: Re: [TMIC] TM and Pilates ent: Feb 13, 2010 2:26 PM Randy, ou're like family here at the site and have a lot of good input to offer. I hink that you and I came around the same time. anice, we don't have to currently be ill in order to participate here. ALL are elcome. It's not an exclusive club. espectfully, race Sent from my Verizon Wireless BlackBerry
