Thanks, Bobby Jim; In fact, they thought it was MS to begin with, and I was also convinced of this until my attack on 23 April, when it hit both sides, and I became as I am now. But we share the same meds to a large extent, Baclofen, as an example. My neuro won¹t give me Baclofen because he says I would become too fatigued. But I think it¹s time because with this pain it¹s game-over, anyway.
Dalton From: bobby jim <elbobber...@earthlink.net> Date: Wed, 8 Dec 2010 18:27:55 -0600 To: <tmic-list@eskimo.com>, Akua <a...@artfarm.com> Subject: Re: [TMIC] question Resent-From: <tmic-list@eskimo.com> Resent-Date: Wed, 8 Dec 2010 16:28:30 -0800 I've read elsewhere that once one's brain is affected by myelitis or sclerosis, that makes it an MS issue. And there are several medications to ameliorate that one. BobbyJim > > From: Akua <mailto:a...@artfarm.com> To: tmic-list@eskimo.com > Sent: Wednesday, December 08, 2010 12:47 Subject: Re: [TMIC] question > > > > Not an answer but a suggestion. > > If your lesion is in your brainstem perhaps some of the the medications > > and approaches used for MS might be helpful. > > > > Akua > > > > > >> May I break in with a question of my own? > >> > >> I am having a great deal of trouble with cramping and what I just learned is >> called hypertonis, which is too much muscle tone and willingness to >> contract, and the feedback loop to the brain that would tell the muscle not >> to contract being damaged by the TM in my brainstem, where the lesion was >> actually found. > >> > >> I can't continue to function with this hypertonis, which feels as if I am >> being electrocuted from the base of my spine, all the way down my legs and >> arms, so that it hurts a lot to move at all, or even talk. Only by being >> completely still and relaxed does this pain subside. > >> > >> Have any of you had experience with this? And if so, can you recommend a >> medication which might be useful? > >> > >> Thanks, and hope to hear back soon, > >> > >> Dalton
