Hi, I am suffering with loss of center vision since my childhood. Doctors says that this is a special type of RP which begins from center and gradually moves towards the periphery. Recently from 12 inches I could see only the first line. But I have been doing eye yoga since more then 16 yrs although not very regularly except the first 5 years, but still I strongly believe I could protect my vision from total vision loss. Just 4 months back I met with a not so very common eye condition called uvitis in my left eye. I couldn't see anything with my left eye then. However with steroids there was some improvement. Still lots of pigmentation occurs at times due to which my vision goes down drastically. I came across a naturopathic doctor. According to him any condition can be reversed with appropriate diet. So he gave me some routine diets to have with regular foods such as lots of sallads made of carrot and all. I am following prescription given by him and within 4 weeks, I could even read the 4th line on the chart from 12 inches. The pigmentation in my left eye is gradually decreased in frequency and I am feeling better. He assured me within 6 months you will be able to read all the 7 lines of the chart from 36 inches which constitutes 3/6 vision. I am positive on this and moving ahead. I will also take some new exercises with him after monsoon, until then I will honestly follow the diet plan.
On 4/1/15, firoz <[email protected]> wrote: > hi > > I am firoz pathan age 54 and total loss of sight > > I had rp since birth but during child hood I had only night vision gone but > > my straight vision was good > > it was real hard to play out side with other normal children but some how I > > could manage to complete my study and I did not disclose my r p at the time > > of interview and got the job as chemistry teacher in higher secondary > school I did not move around lot and try to remember all my topics so I can > > read and write on black board more extensivly and that helps when I lost > my sight at the age of ulmost 31 or 32 . > > due to my good command on subject and good nature and support of the > students and school management by the grace of almighty I did continue my > teaching career and manage to remain as good teacher all the time > > I raised one son and daughter with the income I got by the grace of > almighty and help of my house wife > > my daughter is pharmacist got merried to civil engeineer and setteled in > sidny australiya > > my son is physical therapist and merried and setteled in north carolina in > america > > before six or seven years ago while returning from my speech at say every > thing at bombay I fell down at railway track and got hip ball replacement > > same year with broken leg and total blind ness I got visa for america so I > > moved with my wife here and by the grace of al mighty I got job as sewing > machine operator and I took it and still I am doing it and I manage to > send money to my son so he could able to complete his degree and now got > settled with me here > > now this year I will be applying for citizen ship if almighty wishes I will > > get american pass port and then I am thinking to get retirement and might > come back to india > > during my partial blind ness and total blind ness the al mighty helps me > all the way and good wishes of all my elders and well wishers > > I do believe in god totally and only the faith in al mighty and dedication > > I could able to draw all the complex chemical structures on black board and > > solved equations even it was hard to get settled in america before five > years with pathan as a surname and recession but some how we did it > > I will give you one example of how much and how with every moment god helps > > me I will try to be sort > > I was standing in winston salem north carolina in america with my wife on > > very first day on the road early in the morning with chilly winter and not > > knowing where is the bust stop or in which direction I have to go different > > weather different culture and language but again it was god who made all > this possible for me and I am still here > > blind ness or no blind ness no problem if god wishes and you are in straight > > path you can get result in your faver , > > I will end with one note that I used to tell all my students in journey of > > 27 years of teaching and even my kids also > > remember only one thing > > what we can do "" honestly work hard with full concentration and with > happyness "" remaining things are in gods hand > > -------------------------------------------------- > firoz > From: "Vamshi. G" <[email protected]> > Sent: Tuesday, March 31, 2015 11:39 AM > To: "Saravanan.K" <[email protected]>; "AccessIndia: a list for > discussing accessibility and issues concerningthe disabled." > <[email protected]> > Subject: Re: [AI] Victims of RP > >> Hi, >> >> I can say I'm in the penultimate stage of blindness due to RP. I >> could cope with the condition at every stage with appropriate >> adjustments and adaptations. These range from stopping riding a cycle >> and walking, reading with eye glasses to magnifying glasses, using >> screen readers, etc. The latest in this series is learning mobility >> with white cane just a few months ago. >> >> Let me tell you how I take RP. I was prepared for blindness right at >> the moment I came to know about my condition. What ever vision i have >> is bonus from god. I am open to any lifestyle changes warranted by >> RP. I hope some treatment comes through. Otherwise, I'm ok living >> with blindness throughout this life. >> >> I'm neither the only person nor the first person to become blind. So >> many blind people are living life with dignity and enjoyment. Why >> can't I? >> >> >> >> On 3/31/15, Saravanan.K <[email protected]> wrote: >>> Dear Friends, >>> >>> I am Saravanan from bangalore. >>> I hope you are all fine. >>> As we all know that RP is a disease which will gradualy reduce down the >>> vision. In most of the cases it will result in complete blindness. >>> Til today, there is no standardized treatment for this disease. >>> If you visit any doctor, they will reply that it is stil on research. >>> The percentage of persons having RP is keep on increasing like anything. >>> >>> The >>> persons will not recognize any diffrence in the initial stages of RP. >>> It is like a slow poison without pain eating our life. >>> The persons suffering by RP can cross all stages from good vision to >>> complete blindness. It is very clear that RP persons are fight ing in >>> the >>> battle of vision limits . they are all sailing in the broken ship with >>> only >>> hope that there is someone(GOD) to save their lives. >>> >>> In our friends circle, How many of them are victims of RP. >>> To be frank, I want our friends to put your views and expressions, how >>> you >>> are facing this situations. >>> >>> Shall we know what is the current vision status. >>> Are you realizing your loss of vision. >>> in what duration it takes place. >>> Are you ready to tackle the next stage. >>> How are you facing family - job - friends with RP. >>> We ourself doesn't realize the changes between yesterday and today, how >>> you >>> make your soroundings to know about you. >>> And finally what about our future. >>> Please share only your experience . >>> We don't want any imaginations. >>> Thanks >>> Saravanan.K >>> +91 9916512402 >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> Register at the dedicated AccessIndia list for discussing accessibility >>> of >>> mobile phones / Tabs on: >>> http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in >>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/[email protected]/ >>> >>> To unsubscribe send a message to >>> [email protected] >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please >>> visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >>> >>> the >>> person sending the mail and AI in no way relates itself to its veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the >>> mails >>> sent through this mailing list.. >>> >> >> >> -- >> G. Vamshi >> Mobile: +91 9949349497 >> Skype: gvamshi81 >> >> www.retinaindia.org >> From darkness unto light >> >> >> >> Register at the dedicated AccessIndia list for discussing accessibility of >> >> mobile phones / Tabs on: >> http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, >> please visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >> the person sending the mail and AI in no way relates itself to its >> veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the mails >> >> sent through this mailing list.. > > > > > Register at the dedicated AccessIndia list for discussing accessibility of > mobile phones / Tabs on: > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > Register at the dedicated AccessIndia list for discussing accessibility of mobile phones / Tabs on: http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
