HI all It was in may 2000 when I became 15 I was diagnosed RP. At that time I had manageable vision but now I have very little vision left. It is solely due to my family that I could face the vision loss phase of my life with great strength. In between sometime I feel little restless but I come out of it thinking of persons who are in worse conditions than me
Narendra. On 4/1/15, Sucharu <[email protected]> wrote: > Hello All, > Good morning! > I am Sucharu, 34 in age. > I was diagnosed with RP 9 years back. It was the first year of my > marriage, > career and I was expecting. > I was employed with a software company as development engineer trainee, my > dream job. During all my diagnosis I never got even a hint about something > like screen readers exist. This may be a surprise for many among us but my > first clue for it was Satyamev Jayate by Aamir Khan , an episode was on > disability. > For long 7-8 years I keep fighting like a warrior never submitting to > situation. > I kept on making adaptations in kitchen, in relations and where not. In the > whole journey, my strength was my family which cared a lot for me and my > belief that everything happens for a purpose. But Every step of mine > towards > empowering myself is criticized by my surroundings and even my loved ones. > But as per my experience, we Indians keep looking for temporary solutions > for the permanent problems. This is even more hurtening than being blind in > itself. > Right now, I completely am concentrating on my present well-being and > convinced even about a better future. > I would like to summarize my experiences in the following points: > By being a good example, I am contributing to the life of my son in more > ways than any otherwise feasible manner. > It is my own duty to rehabilitate myself. > You can actually realize the real potential of a problem by being a part of > it. > Your dream must have a drive enough to pull you out of small and big > hurdles. > There is nothing like perfect, be it your life, partner, anything or > situation. > > It is most difficult to keep crippling about anything and suffer > continuously, so take an easier path and do how so little you can > Thanks, > Sucharu > -----Original Message----- > From: AccessIndia [mailto:[email protected]] On Behalf > Of Pinkesh Tailor > Sent: Wednesday, April 01, 2015 9:11 AM > To: AccessIndia: a list for discussing accessibility and issues concerning > the disabled. > Subject: Re: [AI] Victims of RP > > Hi, I am suffering with loss of center vision since my childhood. > Doctors says that this is a special type of RP which begins from center and > gradually moves towards the periphery. Recently from 12 inches I could see > only the first line. But I have been doing eye yoga since more then 16 yrs > although not very regularly except the first 5 years, but still I strongly > believe I could protect my vision from total vision loss. Just 4 months > back > I met with a not so very common eye condition called uvitis in my left eye. > I couldn't see anything with my left eye then. However with steroids there > was some improvement. Still lots of pigmentation occurs at times due to > which my vision goes down drastically. I came across a naturopathic doctor. > According to him any condition can be reversed with appropriate diet. > So he gave me some routine diets to have with regular foods such as lots of > sallads made of carrot and all. I am following prescription given by him > and > within 4 weeks, I could even read the 4th line on the chart from 12 inches. > The pigmentation in my left eye is gradually decreased in frequency and I > am > feeling better. He assured me within 6 months you will be able to read all > the 7 lines of the chart from 36 inches which constitutes 3/6 vision. I am > positive on this and moving ahead. I will also take some new exercises with > him after monsoon, until then I will honestly follow the diet plan. > > On 4/1/15, firoz <[email protected]> wrote: >> hi >> >> I am firoz pathan age 54 and total loss of sight >> >> I had rp since birth but during child hood I had only night vision >> gone but >> >> my straight vision was good >> >> it was real hard to play out side with other normal children but some >> how I >> >> could manage to complete my study and I did not disclose my r p at the >> time >> >> of interview and got the job as chemistry teacher in higher >> secondary school I did not move around lot and try to remember all my >> topics so I can >> >> read and write on black board more extensivly and that helps when I >> lost my sight at the age of ulmost 31 or 32 . >> >> due to my good command on subject and good nature and support of the >> students and school management by the grace of almighty I did >> continue my teaching career and manage to remain as good teacher all >> the time >> >> I raised one son and daughter with the income I got by the grace of >> almighty and help of my house wife >> >> my daughter is pharmacist got merried to civil engeineer and >> setteled in sidny australiya >> >> my son is physical therapist and merried and setteled in north >> carolina in america >> >> before six or seven years ago while returning from my speech at say >> every thing at bombay I fell down at railway track and got hip ball >> replacement >> >> same year with broken leg and total blind ness I got visa for america >> so I >> >> moved with my wife here and by the grace of al mighty I got job as >> sewing machine operator and I took it and still I am doing it and I >> manage to send money to my son so he could able to complete his degree >> and now got settled with me here >> >> now this year I will be applying for citizen ship if almighty wishes I >> will >> >> get american pass port and then I am thinking to get retirement and >> might come back to india >> >> during my partial blind ness and total blind ness the al mighty helps >> me all the way and good wishes of all my elders and well wishers >> >> I do believe in god totally and only the faith in al mighty and >> dedication >> >> I could able to draw all the complex chemical structures on black >> board and >> >> solved equations even it was hard to get settled in america before >> five years with pathan as a surname and recession but some how we did >> it >> >> I will give you one example of how much and how with every moment god >> helps >> >> me I will try to be sort >> >> I was standing in winston salem north carolina in america with my >> wife on >> >> very first day on the road early in the morning with chilly winter >> and not >> >> knowing where is the bust stop or in which direction I have to go >> different >> >> weather different culture and language but again it was god who made >> all this possible for me and I am still here >> >> blind ness or no blind ness no problem if god wishes and you are in >> straight >> >> path you can get result in your faver , >> >> I will end with one note that I used to tell all my students in >> journey of >> >> 27 years of teaching and even my kids also >> >> remember only one thing >> >> what we can do "" honestly work hard with full concentration and with >> happyness "" remaining things are in gods hand >> >> -------------------------------------------------- >> firoz >> From: "Vamshi. G" <[email protected]> >> Sent: Tuesday, March 31, 2015 11:39 AM >> To: "Saravanan.K" <[email protected]>; "AccessIndia: a list for >> discussing accessibility and issues concerningthe disabled." >> <[email protected]> >> Subject: Re: [AI] Victims of RP >> >>> Hi, >>> >>> I can say I'm in the penultimate stage of blindness due to RP. I >>> could cope with the condition at every stage with appropriate >>> adjustments and adaptations. These range from stopping riding a >>> cycle and walking, reading with eye glasses to magnifying glasses, >>> using screen readers, etc. The latest in this series is learning >>> mobility with white cane just a few months ago. >>> >>> Let me tell you how I take RP. I was prepared for blindness right >>> at the moment I came to know about my condition. What ever vision i >>> have is bonus from god. I am open to any lifestyle changes warranted >>> by RP. I hope some treatment comes through. Otherwise, I'm ok >>> living with blindness throughout this life. >>> >>> I'm neither the only person nor the first person to become blind. So >>> many blind people are living life with dignity and enjoyment. Why >>> can't I? >>> >>> >>> >>> On 3/31/15, Saravanan.K <[email protected]> wrote: >>>> Dear Friends, >>>> >>>> I am Saravanan from bangalore. >>>> I hope you are all fine. >>>> As we all know that RP is a disease which will gradualy reduce down >>>> the vision. In most of the cases it will result in complete blindness. >>>> Til today, there is no standardized treatment for this disease. >>>> If you visit any doctor, they will reply that it is stil on research. >>>> The percentage of persons having RP is keep on increasing like >>>> anything. >>>> >>>> The >>>> persons will not recognize any diffrence in the initial stages of RP. >>>> It is like a slow poison without pain eating our life. >>>> The persons suffering by RP can cross all stages from good vision to >>>> complete blindness. It is very clear that RP persons are fight ing >>>> in the battle of vision limits . they are all sailing in the broken >>>> ship with only hope that there is someone(GOD) to save their lives. >>>> >>>> In our friends circle, How many of them are victims of RP. >>>> To be frank, I want our friends to put your views and expressions, >>>> how you are facing this situations. >>>> >>>> Shall we know what is the current vision status. >>>> Are you realizing your loss of vision. >>>> in what duration it takes place. >>>> Are you ready to tackle the next stage. >>>> How are you facing family - job - friends with RP. >>>> We ourself doesn't realize the changes between yesterday and today, >>>> how you make your soroundings to know about you. >>>> And finally what about our future. >>>> Please share only your experience . >>>> We don't want any imaginations. >>>> Thanks >>>> Saravanan.K >>>> +91 9916512402 >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> Register at the dedicated AccessIndia list for discussing >>>> accessibility of mobile phones / Tabs on: >>>> http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_a >>>> ccessindia.org.in >>>> >>>> >>>> Search for old postings at: >>>> http://www.mail-archive.com/[email protected]/ >>>> >>>> To unsubscribe send a message to >>>> [email protected] >>>> with the subject unsubscribe. >>>> >>>> To change your subscription to digest mode or make any other >>>> changes, please visit the list home page at >>>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.o >>>> rg.in >>>> >>>> >>>> Disclaimer: >>>> 1. Contents of the mails, factual, or otherwise, reflect the >>>> thinking of >>>> >>>> the >>>> person sending the mail and AI in no way relates itself to its >>>> veracity; >>>> >>>> 2. AI cannot be held liable for any commission/omission based on the >>>> mails sent through this mailing list.. >>>> >>> >>> >>> -- >>> G. Vamshi >>> Mobile: +91 9949349497 >>> Skype: gvamshi81 >>> >>> www.retinaindia.org >>> From darkness unto light >>> >>> >>> >>> Register at the dedicated AccessIndia list for discussing accessibility > of >>> >>> mobile phones / Tabs on: >>> > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessind > ia.org.in >>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/[email protected]/ >>> >>> To unsubscribe send a message to >>> [email protected] >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >>> the person sending the mail and AI in no way relates itself to its >>> veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the > mails >>> >>> sent through this mailing list.. >> >> >> >> >> Register at the dedicated AccessIndia list for discussing accessibility >> of >> mobile phones / Tabs on: >> > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessind > ia.org.in >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, > please >> visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of > the >> person sending the mail and AI in no way relates itself to its veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the >> mails >> sent through this mailing list.. >> > > > > Register at the dedicated AccessIndia list for discussing accessibility of > mobile phones / Tabs on: > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessind > ia.org.in > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, > please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of > the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > > > > > Register at the dedicated AccessIndia list for discussing accessibility of > mobile phones / Tabs on: > http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > Register at the dedicated AccessIndia list for discussing accessibility of mobile phones / Tabs on: http://mail.accessindia.org.in/mailman/listinfo/mobile.accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
