Hello Mary,

Glad you have hired help, I hope to be hiring someone by early 
January.  

BIG CONGRATULATIONS ON YOUR PCRU status ;>)!

Actually, Dr. Mauro said that they had a 75% rate of success on the 
50 patients that had autologous transplants.  He also stated that 
most of the patients had their harvest done while in CCR and he 
would expect the success rate to increase with PCRU.  I am PCRU and 
have completed a partial harvest with the second part to happen in 
early January.  I was supposed to do it this fall but I got too busy 
with life in general.  

I really do not think that we will have to use it, but who knows.  I 
think you should "strike while the iron is hot".  I was off of 
Gleevec for over 10 days during my first harvest attempt and I had 
injected copious amounts of CGSF.  We collected over 1 million cells 
and the quantitative PCR on the specimen and me after all was said 
and done was still "undetectable".  I think more and more centers 
will be encouraging patients to go for the harvest if their 
insurance will cover it, because the risks are pretty low once you 
are PCRU.

As for worry of infections while in the hospital, I had a femoral 
vein catheter inserted which required hospitalization.  The aphresis 
procedure is usually done on or near the transplant ward and the 
nurses are specially trained.  Although infection can always happen, 
I think it is pretty rare.  I did not have any problems with 
infection.  I had a previous harvest that was done at diagnosis with 
catheters in both arms and I have to say that I much rather 
preferred the femoral vein catheter, even though it was 
uncomfortable.

There are risks with everything we chose to do, but the other thing 
I think about is what if a really good vaccine comes along which 
requires the use of my collected cells or some other procedure that 
isn't known to us yet.    I was slightly anemic after the procedure, 
but I always have trouble with keeping my Hgb in the "normal".  One 
injection of Eprex (Procrit, 40,000 IU's) and I was back in full 
swing again.  Take lots of calcium before during and after as you 
have more of a risk to deplete your calcium than you do of 
developing anemia.

Hope this helps and let us know what you decide.


Cheers,
Cheryl-Anne

--- In [EMAIL PROTECTED], Mary Toole <[EMAIL PROTECTED]> wrote:
> Hi to everyone.  I have been so overwhelmed with work the last few 
weeks.  I hired someone to help me out and training her has been a 
long ordeal.  Didn't realize how much I knew!  Tee hee.  She is 
young and has so much energy and doesn't want to stop.  Now I know 
how old I really am!  Last night I was here until 8:00.  But, it 
will be so worth it when we're done.
>  
> Sorry about thinning tips.  I will really try to get going on that 
this week-end.
>  
> Hate to ask for advice when I've been so lax lately, but I need 
some opinions.  Got my PCR results and I am totally undetectable!   
Dr. Sawyers believes that I am at a 4 log reduction. Now, the 
question.   Dr. Sawyers wants me to have a harvest right away.  I 
asked him what the chances were of me actually using the cells and 
he said that it was very small.  He said he would probably try BMS 
first or other therapies that may come along because he doesn't feel 
that I will relapse for quite some time.  He believes there will be 
many other options by then.  But, he said if it were him, he would 
probably do it anyway because of this window of opportunity.
>  
> My concerns are as follows:  Dr. Sawyers wants me to be off 
Gleevec for a good week or so and I'm thinking why rock the boat?  
I'm doing so well on IM and worried that it may change things even 
if slightly.  Also worry about staph infection and sepsis with an 
open wound while being in the hospital.  Unfounded worry?  A lot of 
people have said how it made them so anemic afterwards as well.  I 
remember Dr. Mauro saying that they had 10,000 frozen harvests and 
have only used 2 of them.  He also said that it only worked  about 
half the time.  Is it worth the risk and the discomfort?  Those of 
you who are at PCRU and have not had a harvest, why not?  I would 
really appreciate your opinions as well as those who have chosen 
harvest.  What other risks are there?  
>  
> Thanks in advance for your time.  Regards,
>  
> Mary Toole
> dx 10/02





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