Good morning all
I've been reading posts for about a month and after current developments I've decided to make an introduction. Our 11 year old son Adam was diagnosed with CML in March of this year. He was put on 400mg of Gleevac and seemed to be responding quite well. His counts came down and he became FISH negative. We were expecting molecular remission any day (any mother's wish) when we got a call telling us his FISH had once again become positive. After another test to make sure the machine hadn't malfunctioned we knew that he was showing signs of resistance. His FISH went from negative to 0.5% to 1.0% They have increased his dosage to 800mg and as of yesterday have noticed a few swollen lymph nodes under his arm. We have been advised to start the transplant procedure and will be having our "intake" meeting next week. Adam's brother is not a match and there have been two matches (both 6/6) found on the registry. We live in Calgary, Alberta, Canada and our transplant center will be the Alberta Children's Hospital. I've asked about the trial drugs and have been told that they are not available to us (because of where we live or because he's a pediatric patient, I'm not sure). Our doctor tells us that the procedure can be stopped at any time (pre-condinioning of course) but we're currently looking at late January, early February. I have great confidence in our doctor I'm just extremely frightened about our son's future. Can someone tell me what the swollen lymph nodes mean? Your postings have been a great comfort and an incredible source if information. Until I read the postings regarding the nose problems I just assumed my son was being a typical boy. Our doctor suggested using vitamin E from a capsule. Anyway, sorry to be so long winded. May God Bless you all and keep you strengthened. Suzanne GOD IS WITH US WHERE EVER WE ARE CALLED TO GO ------------------------ Yahoo! Groups Sponsor --------------------~--> Make a clean sweep of pop-up ads. Yahoo! Companion Toolbar. Now with Pop-Up Blocker. Get it for free! http://us.click.yahoo.com/L5YrjA/eSIIAA/yQLSAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [EMAIL PROTECTED] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
