--- In [email protected], M <[EMAIL PROTECTED]> wrote:
> Also, and I must be crazy....I wanted to go the more "curative" route than the treatment route. Is Gleevac safe to take for 50+ years?? My doctor said...."we have no idea". > > He did say that survival rates for a perfect match BMT in someone of my age(24) and relative early stage of CML was better than 50%. > > I believed him. THank God I did. My point is that you should explore all your options. If you do have a perfect 6/6 match...and you are in the early stages of CML..and you are young......A BMT is still your best chance of a "CURE" The long range side effects of Gleevac are unknown. It just bothers me that people are only looking for the next trial of a miracle drug. If you fit the profile...you should be looking for your perfect match donor. I also fear that the Marrow registries will suffer due to these miracle drugs. Thats a conversation for another time. > > I stand by this. Even though a severe majority of this group do not. I will continue to be active on this site provided the "other" perspective!!! > > MikeMike _________________________ Hi Mike, I am glad that you are posting on this list to tell YOUR story about your successful BMT......I am glad that you are alive, not suffering from bad GVHD and have not relapsed. When you look at the 'whole picture'.....all these options are possible and that is what anyone considering a BMT needs to understand. It is TOO EASY for a BMT center to say that this is "the cure" when we know it has not been a cure for many. We have several post-BMTers on the list who relapsed and are now on Gleevec. We also have close friends who did the BMT option for various reasons and did not survive. Even your doctor gave you odds.....you said something above 50%....he did not say 100%! Of course you are happy about your BMT because it went well and you are now healthy......would you be singing the same tune if you were dead, had bad GVHD or had relapsed.....obviously not. My point is....people are happy for you with your good outcome, but it is not the full picture of BMT possiblilites.......and when people present the other side of the 'coin', you need to understand why. And again, we want you on the list.....we need someone to represent a good BMT outcome. Nancy c. ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
