ok, folks....Terry's gout seems to be getting worse....it is 12:30am 
& he is yelling out in pain.....I looked at WebMd & it suggested 
something like Advil (NSAID)....so I gave it to him....800mg

He has been on Allopurinol for a few weeks.  WebMD said something 
along the lines that if you have have not been taking the drug, don't 
start during the middle of an attack.   But since his uric acid level 
was already increasing previous to taking Allopurinol, I am not sure 
whether I would call his increasing pain from several weeks ago an 
attack...to where tonight it is an hard attack due to severity of 
pain.   

okay...well I think the Advil must be helping...he is calming down & 
not screaming out any more.   argh!!!    but very thankful!!   Now, 
all my children are up & kind of wondering what to do.  They were all 
trying to find the heating pad, get Terry the Advil, and worrying.   
I just told them now to watch some TV or play video games while I de-
stress!!!   I did explain that I might take Terry to ER, but we do 
know what is wrong & have an idea of what help he will need, so they 
wouldn't worry about the unknown.

after talking with a friend whose hubby as ALL......well, it seems 
with CML....as you work through the disease...the side effects cause 
other side effects, so you can never just be "okay".....is this a 
fair assessment??  

update....our financial aid app for MD Anderson was submitted, now we 
are awaiting approval....& might now by Mon or prob Tues....then they 
said he would have an appt in 3 weeks.   I also talked to the Patient 
Advocate Foundation to get app forms for some of the various 
prescriptions that we are getting prescribed.   

Terry worked today, but was limping....and I could tell he was going 
down fast.....he also has some upper respiratory problems on top of 
it all.  

He says the constant shooting pain has subsided.....whew!!!   He is 
still uncomforatble, so I guess watch & wait.

Lora....a very worried wife





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