RE: [CML] current problems

Thu, 28 Apr 2005 19:32:26 -0700

Hi Penny,
 
(I am a Penny to).  Side effects should go away with time.  Believe it or not, change of eatting habits does change the way you can feel.  High protein, less carbs does help alot.  Never was one for dieting but I watch what i eat, try to stay away from pasta, rice, white bread and i believe it does help.  Still even after 2 years I have puffy eyes but not to bad.  Had the rash, really really bad, thought I was going to have to get off of Gleevec, but stuck it out, with alot of help from the board.  Didn't have nauseau, but did have leg aches, bad real bad, could hardly move, I would take aleve and then, honestly one day they just disappeared.  I still have though charley horse in my calfs from time to time, my toes cramp up and my fingers, but if that is it, I can deal with it.  Everything else is good.  Sometimes I do get tired, but I just keep on going...Procrit or Eprix will help his RBC or HGB which will give him more energy, ask yourdoctor about that.
 
HOpe this helps a bit and hope your son feels better soon!
 
Penny R
Dx 26/03/2003
Dosage 800mg
Full remission 18/07/2003 and still there!!!

David Schulz <[EMAIL PROTECTED]> wrote:
Penny:
These are the side-effects that most of us have. I also have been on 600mg
of Gleevec for almost 4 years. I don't like the puffy eyes in the morning
and the thin skin which causes me to always be cold and have to have
band-aids all over. However, you do get used to it. I have had no bone pain
and no cramps since taking a good multi vitamin and extra calcium,
potassium, and magnesium. You wonder what is really happening with our
bodies. Beats the alternative, though.
Dave

>From: "pennyam1" <[EMAIL PROTECTED]>
>Reply-To: [email protected]
>To: [email protected]
>Subject: [CML] current problems
>Date: Wed, 27 Apr 2005 01:56:32 -0000
>
>
>I hope someone out there can give me some feedback on some of your side
>effects while taking gleevec. My son had his dosage raised fromm 400mg
>to 600 mg. and he has been having quite severe pain in his hips and
>pelvic region.  He also says that he is more tired than before and
>doesn't have as much energy.  Any thoughts on this?  Would appreciate
>hearing if anyone else has had this type of pain or pain in the hip
>area.
>
>Thanks, Penny
>
>
>




New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com

Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com

CML (Chronic Myelogenous Leukemia Support List)
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com

Post Message: [email protected]
Subscribe:  [EMAIL PROTECTED]
Unsubscribe:  [EMAIL PROTECTED]
Change To No Mail/Web: [EMAIL PROTECTED]
Change To Digest: [EMAIL PROTECTED]
Change To Email: [EMAIL PROTECTED]
List Help: [EMAIL PROTECTED] 
CML Group Web Site http://groups.yahoo.com/group/CML


__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com

Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com

CML (Chronic Myelogenous Leukemia Support List)
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com

Post Message: [email protected]
Subscribe:  [EMAIL PROTECTED]
Unsubscribe:  [EMAIL PROTECTED]
Change To No Mail/Web: [EMAIL PROTECTED]
Change To Digest: [EMAIL PROTECTED]
Change To Email: [EMAIL PROTECTED]
List Help: [EMAIL PROTECTED] 
CML Group Web Site http://groups.yahoo.com/group/CML



Yahoo! Groups Links

Reply via email to