Dear Pat

I am also suffering from a racing heart beat.  It started
when my doctor changed me to 800mg Gleevec.  I am now taking 400mg 
and my heart beat is 110 and 115.  He told me I need to see a
cardiologist.  So I will let you know the outcome next week.
My prayers are with you and your family.

Rosaura
dx Jul 04


doctor -


-- In [email protected], pat reynolds <[EMAIL PROTECTED]> wrote:
> Hello Friends
> I apologize that it has been a while since I've
> posted. I do still read posts daily to keep up with
> what is going in everyone's lives. Congratualtions to
> those of you reaching remission or celebrating years
> of remission. Congratulations to Penny on the birth of
> her grandchild. A warm welcome to the newbies, and I'm
> so sorry for those of you newly diagnosed, but glad
> you found our support group. There are some wonderful
> people here and tons of info.
> 
> Anyway, to give you an update on my situation, I
> missed my appointment this month so I don't know how
> much closer I have gotten to remission but last visit,
> only had 69 copies out of 100,000 on my PCR test.
> 
> I am still having trouble with appetite. I have lost
> more weight, down to 121 pounds. I weighed 139 at
> diagnois. In spite taking lexapro for depression, I
> have slipped into a severe depression. If everyone can
> recall, I was suffering from depression for a year
> when  I was seeing this transplant doctor who kept
> telling me I was not responding to the Gleevec and
> pressuring me to have transplant and telling me I was
> going to die without it. As I've stated before, I had
> decided against the transplant and so thought for many
> months, I was going to die and it was just a matter of
> time. In February of this year, I started seeing a CML
> specialist and learned that I was responding to the
> Gleevec and this doctor said there was no need for
> concern about a BMT at this time. I was totally
> relieved and started to feel somewhat better mentally,
> but I think that year of constant fear really took
> it's toll on me. Along with that, I am in constant
> stress due to my son and his mental issues and drug
> problems which is really taking me down now. My
> Gleevec symptoms still have not subsided. I am
> constantly fatigued and the dirrehea is horrendous. I
> have to force myself to eat, and what I do eat sends
> me immediately to the bathroom as soon as it hits my
> stomach in spite of the extra dosage I take of
> lomotol.
> 
> I'm also having a racing heart...pulse rate always 100
> or more. Even upon first waking up in the mornings, my
> heart rate is anywhere from 100 as high as to 126. It
> beats so fast, I can actually see the movement under
> my clothes and it sometimes skips beats, and this
> alone literally drains me. I spoke to my primary care
> physician about this more than once, asking her to do
> an EKG, but she says this is common in leukemia
> patients. I've never heard this and I was wondering if
> it anyone else in the group might have the same
> problem. My doctor advised me to take one of my xanax
> when this occurs which does calm my heart down, but
> often once the xanax has wore off, it is racing again.
>   I think something is going on with my heart. I also
> have to go back for a catscan of my lungs as 2 nodules
> appeared on my last one some 8 to 10 months ago.
> Something else to worry me.
> 
> I would appreciate if anyone else has the increased
> heart rate, please let me know and I'd appreciate if
> you would all pray for me as I try to overcome yet
> another obstacle.
> 
> Love, Peace, Hope & Prayers, Pat
> 
> 
>               
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