Hi Pat, I am sorry to hear of the problems you are having. I too have been experiencing racing heartbeat, flip flops, skipped beats, fatigue, shortness of breath, but no chest pain at all. I had mentioned this to my local onc and the one at MDACC, niether one really responded to me at all. Three weeks ago it was really bad so I called my regular Dr. who is more concerned about me than either onc that I see. They said come up right now, I had a EKG done in the office and was sent for thyroid test and chest x-ray which both came back normal. While I was there my heart rate was 153. I was dx with a sinus tachycardia. He said if it happens again go to the hospital and get a 24 hour heart monitor. That test showed that the only time my heart rate was under 100 was when I was asleep. So I was told to call my onc and let them know what was going on and that my Dr. was going to send all the test results to them to see if any other tests need to be done, because he wasn't familiar with Gleevec. I called and did that on Monday and I haven't heard a word since. I guess I will have to call them back just like usual. My Dr. said if it is a sinus tachycardia it is not dangerous and that sometimes they can't find a reason for it. I do notice if I am walking on my treadmill or even running upstairs that will bring it on. Also the monitor showed an occaisional skipped beats so it was nice to know it wasn't my imagination. So far thats all I know, I haven't walked on the treadmill since Monday and have not had any problems. If I excercise alot it seems constant. My Dr. said they could probably treat it with a beta blocker to slow down the heart. I will share any other news I find out.
Shari from Kansas dx feb 03 gleevec 400mg pcr 0.09 --- In [email protected], pat reynolds <[EMAIL PROTECTED]> wrote: > Hello Friends > I apologize that it has been a while since I've > posted. I do still read posts daily to keep up with > what is going in everyone's lives. Congratualtions to > those of you reaching remission or celebrating years > of remission. Congratulations to Penny on the birth of > her grandchild. A warm welcome to the newbies, and I'm > so sorry for those of you newly diagnosed, but glad > you found our support group. There are some wonderful > people here and tons of info. > > Anyway, to give you an update on my situation, I > missed my appointment this month so I don't know how > much closer I have gotten to remission but last visit, > only had 69 copies out of 100,000 on my PCR test. > > I am still having trouble with appetite. I have lost > more weight, down to 121 pounds. I weighed 139 at > diagnois. In spite taking lexapro for depression, I > have slipped into a severe depression. If everyone can > recall, I was suffering from depression for a year > when I was seeing this transplant doctor who kept > telling me I was not responding to the Gleevec and > pressuring me to have transplant and telling me I was > going to die without it. As I've stated before, I had > decided against the transplant and so thought for many > months, I was going to die and it was just a matter of > time. In February of this year, I started seeing a CML > specialist and learned that I was responding to the > Gleevec and this doctor said there was no need for > concern about a BMT at this time. I was totally > relieved and started to feel somewhat better mentally, > but I think that year of constant fear really took > it's toll on me. Along with that, I am in constant > stress due to my son and his mental issues and drug > problems which is really taking me down now. My > Gleevec symptoms still have not subsided. I am > constantly fatigued and the dirrehea is horrendous. I > have to force myself to eat, and what I do eat sends > me immediately to the bathroom as soon as it hits my > stomach in spite of the extra dosage I take of > lomotol. > > I'm also having a racing heart...pulse rate always 100 > or more. Even upon first waking up in the mornings, my > heart rate is anywhere from 100 as high as to 126. It > beats so fast, I can actually see the movement under > my clothes and it sometimes skips beats, and this > alone literally drains me. I spoke to my primary care > physician about this more than once, asking her to do > an EKG, but she says this is common in leukemia > patients. I've never heard this and I was wondering if > it anyone else in the group might have the same > problem. My doctor advised me to take one of my xanax > when this occurs which does calm my heart down, but > often once the xanax has wore off, it is racing again. > I think something is going on with my heart. I also > have to go back for a catscan of my lungs as 2 nodules > appeared on my last one some 8 to 10 months ago. > Something else to worry me. > > I would appreciate if anyone else has the increased > heart rate, please let me know and I'd appreciate if > you would all pray for me as I try to overcome yet > another obstacle. > > Love, Peace, Hope & Prayers, Pat > > > > __________________________________ > Do you Yahoo!? > Yahoo! Mail - Helps protect you from nasty viruses. > http://promotions.yahoo.com/new_mail ------------------------ Yahoo! Groups Sponsor --------------------~--> In low income neighborhoods, 84% do not own computers. At Network for Good, help bridge the Digital Divide! http://us.click.yahoo.com/V_qgJD/3MnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
