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Well, my fellow CML'ers...I have been there and done that!
I don't post too often, but I am feeling a little
desperate.
I live in Colorado, and decided to wait for the BMS trial to
begin in Denver at the Rocky Mountain Cancer Center. It is 5 hours away, but,
closer than LA or Houston.
My WBC hasn't been below 70,000 in some time, and I am doing
Procrit to help the low hemoglobin. My spleen is the size of Texas, (well, it
feels that big!), and I am TIRED all the time.
My regular oncologist told me to try, so I am trying to get on
this BMS trial.
I meet Dr. Matus in Denver ,in early May. I went to get all
the tests done last Thursday, BMB, EKG, bloodwork...Friday I was told my "blast"
cells are at 12,000, therefore I wasn't eligible for the trial! I need to be at
15,000 or better (worse!)...or in the "chronic" phase.
It's all SO unfair! The doctors tell me I am a "mirical", a
true "survivor". I mean, I have gone through "blast" phases , some as high as
22,000. and survived. I get better, and then worse.
Has anyone else had this happen? I mean, I was dx'd in
'93...yes, '93. I suppose I should be dead. But, that's no fun!
I keep thinking, has ANYONE else survived like I have? In and
out of "blast" phase?
Are there any other studies out there I could be on? I am not
sick enough, or, too sick! It's crazy.
Still crazy after all these years,
Sharman Denison
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- Re: [CML] BMS Trial in Denver Sharman Denison
