From what I understand there are different trials for chronic, accelerated,
and blast and each have different entrance requirements. If you cannot get into
the Denver trial location you might want to consider trying to get to Texas or
LA at this point if they have trials that could accept you. The AMN trial is
also open in some locations and the larger centers such as Texas and LA may also
have other types of trials that would fit your situation.
----- Original Message -----
Sent: Monday, May 30, 2005 9:24 AM
Subject: [CML] BMS Trial in Denver
Well, my fellow CML'ers...I have been there and done that!
I don't post too often, but I am feeling a little
desperate.
I live in Colorado, and decided to wait for the BMS trial to
begin in Denver at the Rocky Mountain Cancer Center. It is 5 hours away, but,
closer than LA or Houston.
My WBC hasn't been below 70,000 in some time, and I am doing
Procrit to help the low hemoglobin. My spleen is the size of Texas, (well, it
feels that big!), and I am TIRED all the time.
My regular oncologist told me to try, so I am trying to get
on this BMS trial.
I meet Dr. Matus in Denver ,in early May. I went to get all
the tests done last Thursday, BMB, EKG, bloodwork...Friday I was told my
"blast" cells are at 12,000, therefore I wasn't eligible for the trial! I need
to be at 15,000 or better (worse!)...or in the "chronic" phase.
It's all SO unfair! The doctors tell me I am a "mirical", a
true "survivor". I mean, I have gone through "blast" phases , some as high as
22,000. and survived. I get better, and then worse.
Has anyone else had this happen? I mean, I was dx'd in
'93...yes, '93. I suppose I should be dead. But, that's no fun!
I keep thinking, has ANYONE else survived like I have? In
and out of "blast" phase?
Are there any other studies out there I could be on? I am
not sick enough, or, too sick! It's crazy.
Still crazy after all these years,
Sharman Denison
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