Sharman, God Bless your heart. I hope you have more years to come
Teresa T
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Well, my fellow CML'ers...I have been there and done that!I don't post too often, but I am feeling a little desperate.I live in Colorado, and decided to wait for the BMS trial to begin in Denver at the Rocky Mountain Cancer Center. It is 5 hours away, but, closer than LA or Houston.My WBC hasn't been below 70,000 in some time, and I am doing Procrit to help the low hemoglobin. My spleen is the size of Texas, (well, it feels that big!), and I am TIRED all the time.My regular oncologist told me to try, so I am trying to get on this BMS trial.I meet Dr. Matus in Denver ,in early May. I went to get all the tests done last Thursday, BMB, EKG, bloodwork...Friday I was told my "blast" cells are at 12,000, therefore I wasn't eligible for the trial! I need to be at 15,000 or better (worse!)...or in the "chronic" phase.It's all SO unfair! The doctors tell me I am a "mirical", a true "survivor". I mean, I have gone through "blast" phases , some as high as 22,000. and survived. I get better, and then worse.Has anyone else had this happen? I mean, I was dx'd in '93...yes, '93. I suppose I should be dead. But, that's no fun!I keep thinking, has ANYONE else survived like I have? In and out of "blast" phase?Are there any other studies out there I could be on? I am not sick enough, or, too sick! It's crazy.Still crazy after all these years,Sharman Denison
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