My 33 year-old daughter was diagnosed offically on May 13, 2005.  It 
was a real shock, obviously.  Not something you plan!  Her WBC's 
didn't escalate until the doctor tried prednisone to verify that she 
didn't have an infectious process.  So, after the BMB, she started on 
hydroxurea.  We've been to UCLA and to OSHU in Portland, both 
wonderful places with caring, knowledgable staff.  Started on 600 mg 
Gleevec which we were told is having great success at MD Anderson and 
in Australia.  I guess the hardest part, aside from an uncertain 
future, for my daughter is trying to be enthused about work and 
mundane life chores when what she wants to do is hold her three little 
children close to her.  Life has taken a different path now but 
already it is one that is changing our lives and making us so much 
more aware of the things that really matter.
I have two other children who are in the process of being tested to 
see if they are 100 percent matches for a BMT.  That is our prayer at 
this time.
This group has been a great source of inspiration and education.  
Thank you!
Loggin




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