Hi Loggin,

I was diagnosed 3 days after your daughter and it is a huge shock. 
At 39, I never expected to hear something like this. Actually, I 
found that getting my life back to normal has helped me to deal with 
it better. It's not always easy to keep a positive attitude, but I 
have been assured by 3 doctors at St. Bartholomew's Hospital in 
London that I can lead a normal life. Your daughter needs your love 
and support, so try and be positive for her if you can. We don't 
have a guarantee on our future, but then who does? This group has 
been a wonderful resource for me. Please keep us posted on her 
progress.

Nefi




--- In [email protected], "loggin23" <[EMAIL PROTECTED]> wrote:
> My 33 year-old daughter was diagnosed offically on May 13, 2005.  
It 
> was a real shock, obviously.  Not something you plan!  Her WBC's 
> didn't escalate until the doctor tried prednisone to verify that 
she 
> didn't have an infectious process.  So, after the BMB, she started 
on 
> hydroxurea.  We've been to UCLA and to OSHU in Portland, both 
> wonderful places with caring, knowledgable staff.  Started on 600 
mg 
> Gleevec which we were told is having great success at MD Anderson 
and 
> in Australia.  I guess the hardest part, aside from an uncertain 
> future, for my daughter is trying to be enthused about work and 
> mundane life chores when what she wants to do is hold her three 
little 
> children close to her.  Life has taken a different path now but 
> already it is one that is changing our lives and making us so much 
> more aware of the things that really matter.
> I have two other children who are in the process of being tested 
to 
> see if they are 100 percent matches for a BMT.  That is our prayer 
at 
> this time.
> This group has been a great source of inspiration and education.  
> Thank you!
> Loggin





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