Pat :)
Thank you very much :) Its nice to know i am not alone. I myself am terrified of the transplant factor.I think for myself ts a last option I see stem cell in the (hopefully) very,very,very,very late future.It sounds to me that i am going down the same road . It is scarey. Im happy that you are almost in remission :):) Ill keep my fingers crosssed for ya and keep you in my prayers for that "o". I talked to some one at strong about my treatment optionsand upping the gleevec is my next route, then they said "super" gleevec ?? Have you heard of this ? I guess its new ( thank god for technology).What were some of the problems you had on the higher dosage ? Were any of them life threatening ? If you dont want to talk about it I understand, If you do it would be helpful to know how todeal with it when it comes my way.I admit im a big baby when it comes to all of this lol.I wish i had a crystal ball. Id do a reading for all of us lol.Any way ill take it as it comes lol as long as
it keeps coming :)
My prayers and thanks to you ,
Char :) :) :)
Patricia <[EMAIL PROTECTED]> wrote:
Patricia <[EMAIL PROTECTED]> wrote:
Char, I just wanted to share my experience. I was dx'd in Nov. 2003.
For much of the next 6 to 8 months, my PCR numbers were up and down.
The transplant doctor I was seeing at that time kept telling me I was
not responding well to the Gleevec, and said he thought I was building
up a resistance to the Gleevec and was pressuring me to have a
transplant. I was totally against transplant from the beginning, I
mean for me personally it is was not an option. Anyway, he increased
my dosage from 400mg to 600mg and then to 800mg. I could not tolerate
the 800mg and I now take 600mg. After 15 months, I have almost made it
to complete remission. I did confer with Dr. Brian Druker for a second
opinion. I was terrified for a whole year but I gradually made it. I
think everyone responds to Gleevec differently considering the side
effects and how well, or how soon you respond to it. Maybe you should
try an increased dosage. Hope my input has helped you in some way?
Love, Peace, Hope & Prayers, Pat
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