--- In [email protected], char fisher <[EMAIL PROTECTED]> wrote: > Pat :) > Thank you very much :) Its nice to know i am not alone. I myself am terrified of the transplant factor.I think for myself ts a last option I see stem cell in the (hopefully) very,very,very,very late future.It sounds to me that i am going down the same road . It is scarey. Im happy that you are almost in remission :):) Ill keep my fingers crosssed for ya and keep you in my prayers for that "o". I talked to some one at strong about my treatment optionsand upping the gleevec is my next route, then they said "super" gleevec ?? Have you heard of this ? I guess its new ( thank god for technology).What were some of the problems you had on the higher dosage ? Were any of them life threatening ? If you dont want to talk about it I understand, If you do it would be helpful to know how todeal with it when it comes my way.I admit im a big baby when it comes to all of this lol.I wish i had a crystal ball. Id do a reading for all of us lol.Any way ill take it as it comes lol as long as it keeps > coming :) > > My prayers and thanks to you , > Char :) :) :) > > Patricia <[EMAIL PROTECTED]> wrote: > Char, I just wanted to share my experience. I was dx'd in Nov. 2003. > For much of the next 6 to 8 months, my PCR numbers were up and down. > The transplant doctor I was seeing at that time kept telling me I was > not responding well to the Gleevec, and said he thought I was building > up a resistance to the Gleevec and was pressuring me to have a > transplant. I was totally against transplant from the beginning, I > mean for me personally it is was not an option. Anyway, he increased > my dosage from 400mg to 600mg and then to 800mg. I could not tolerate > the 800mg and I now take 600mg. After 15 months, I have almost made it > to complete remission. I did confer with Dr. Brian Druker for a second > opinion. I was terrified for a whole year but I gradually made it. I > think everyone responds to Gleevec differently considering the side > effects and how well, or how soon you respond to it. Maybe you should > try an increased dosage. Hope my input has helped you in some way? > Love, Peace, Hope & Prayers, Pat > > > Char, in answer to your question were my side effects life threatening....No. I would take the 800mg and was so fatigued I could barely get out of bed each day, I would be up for an hour or two and just tire out and have to lay down, I was nauseaous constantly, the dirrehea was horrendous in spite of taking lomotoil almost to the point of causing dehydration and my potassium levels were too low, I have lost my appetite and even decreasing the dosage did not effect this and I still do not have an appetite. When I eat which is very little, it tears my stomach up, cramping and dirrehea after 1 or 2 bites of food. I have bone pain but it has lessened with time. I'm tolerating 600mg now and some of the symptoms are not as severe as they once were so I'm feeeling more positive. It's took 18 months for my body to adjust to it, I suppose. Hang in there...it takes time. Wish you the best. Love, Peace, Hope & Prayers, Pat P.S. You are not a big baby, CML is a life changing experience...hey, I have a VERY LOW TOLERANCE for PAIN and SUFFERING. And I know what you're going through. > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com > > CML (Chronic Myelogenous Leukemia Support List) > --------------------------------- > Part Of CMLHope.Com > An International Community Of CML Patients > For more information: http://cmlhope.com > > Post Message: [email protected] > Subscribe: [EMAIL PROTECTED] > Unsubscribe: [EMAIL PROTECTED] > Change To No Mail/Web: [EMAIL PROTECTED] > Change To Digest: [EMAIL PROTECTED] > Change To Email: [EMAIL PROTECTED] > List Help: [EMAIL PROTECTED] > CML Group Web Site http://groups.yahoo.com/group/CML > > > > > --------------------------------- > Yahoo! Groups Links > > To visit your group on the web, go to: > http://groups.yahoo.com/group/CML/ > > To unsubscribe from this group, send an email to: > [EMAIL PROTECTED] > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > > --------------------------------- > Discover Yahoo! > Get on-the-go sports scores, stock quotes, news & more. Check it out!
New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
