Re: [CML] the next step

livia klescova Sun, 19 Jun 2005 19:19:17 -0700

If some people relapsed many years after they had a BMT, can't they start with new drugs which have been developed? For example Gleevec wouldn't help them?

Rob <[EMAIL PROTECTED]> wrote:

It depends to some extent on what age you are at present. CML experts such as Dr. Talpaz now consider CML a chronic and manageable disease. Gleevec works well in the majority of patients and new drugs such as the BMS and AMN drugs are working well in patients who have had problems with Gleevec. There are additional drugs in the pipeline that will cover mutations.

A BMT, like any other treatment method, does not work in every case. The word "cure" is used a lot with regard to BMT's but it is also important to understand that mortality rates are higher than with drug treatments, there can be serious and debilitating complications, and there is also the possibility of relapse with CML even many years later. Some in this group relapsed many years after having a BMT.

Rob

----- Original Message -----

From: Roger

To: [email protected]

Sent: Saturday, June 18, 2005 4:27 PM

Subject: [CML] the next step

since i am new i now that i will have questions that some may not make much since, but please excuse them. the question i have this time is wheter or not to persue the next step, which would be the transplant. my m.d. is advising against it, and just tells me that i will be fine andnot to worry so much, but my concern is what if i dont respond to any of the medications very well, and if i do what if it last say until im 60 or older, and at that point be out of the transpant age range. Then what am i supposed to do. I know if the meds last that long i should be thankful, but..i dunno. my m.d. has reluctantly agreed to send me to be tested and put on the registry. i feel like it is a pre-imptive strike torwards this disease, atleast at that i will have it out of the way and will know if there are any donors for me. am i wrong to take this step. should i just set and wait it out, and then be forced to get in the "hurry up offense"? I feel i would have more to gain to hav opened another option. And should my doctor be so reluctant, i trust him to the max, but it doesnt seem like he is at all worried with what could happen in an instant. also the hospital he wants me to got to is bowman-grey, any comments on that, the doctor is Dr. Hurd? please inlighten me. thank you roger

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Re: [CML] the next step

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