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Yes some who had a relapse after a BMT have gone on Gleevec.
Rob
----- Original Message -----
Sent: Sunday, June 19, 2005 9:19 PM
Subject: Re: [CML] the next step
If some people relapsed many years after they had a BMT, can't they start
with new drugs which have been developed? For example Gleevec wouldn't help
them? Rob <[EMAIL PROTECTED]>
wrote:
It depends to some extent on what age you are at present. CML
experts such as Dr. Talpaz now consider CML a chronic and manageable
disease. Gleevec works well in the majority of patients and new drugs such
as the BMS and AMN drugs are working well in patients who have had
problems with Gleevec. There are additional drugs in the pipeline that will
cover mutations.
A BMT, like any other treatment method, does not work in every case.
The word "cure" is used a lot with regard to BMT's but it is also important
to understand that mortality rates are higher than with drug
treatments, there can be serious and debilitating complications, and there
is also the possibility of relapse with CML even many years later.
Some in this group relapsed many years after having a BMT.
Rob
----- Original Message -----
Sent: Saturday, June 18, 2005 4:27
PM
Subject: [CML] the next step
since i am new i now that i will have questions that
some may not
make much since, but please excuse them.
the
question i have this time is wheter or not to persue the next
step,
which would be the transplant.
my m.d. is advising against it, and
just tells me that i will be
fine andnot to worry so much, but my
concern is what if i dont
respond to any of the medications very well,
and if i do what if it
last say until im 60 or older, and at that
point be out of the
transpant age range. Then what am i supposed to
do. I know if the
meds last that long i should be thankful,
but..i dunno.
my m.d. has reluctantly agreed to send me to be
tested and put on
the registry. i feel like it is a pre-imptive
strike torwards this
disease, atleast at that i will have it out of
the way and will know
if there are any donors for me.
am i
wrong to take this step. should i just set and wait it out, a nd
then
be forced to get in the "hurry up offense"? I feel i would
have
more to gain to hav opened another option. And should my
doctor
be so reluctant, i trust him to the max, but it doesnt seem
like he is
at all worried with what could happen in an instant.
also the
hospital he wants me to got to is bowman-grey, any comments
on that,
the doctor is Dr. Hurd?
please inlighten me.
thank
you
roger
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