Marcia, Ouch, you've really had a time of it. I have been on Gleevec for little over a year and have had no where near the level of cramps you have had. Do you drink lots of water through the day? It is suppose to reduce the toxicity of the medicine. The cramping areas have stayed the same for me too. I wonder if age has anything to do with the level of severity, it seems the 'more mature' folks experience more severe side effects, I'm 43. What is everyone elses take on this?
--- In [email protected], "Marcia Beaudry" <[EMAIL PROTECTED]> wrote: > > > Hello Brenda, > My name is Marcia, I am 51 years old and have been on 400mg. for 2.5 years! I have the most debilitating cramps in both thighs that I am paralyzed in the dark, only help is to scream for my husband to bring ice bags that I have made up. There is no warning and my legs feel sore for the whole next day. I am not sure about you but I get them at the same time in the same spot of both legs. But the is does help. My biggest problem now is this horrible test in my mouth, I have no desire to eat because It's like poison or something, has anyone else experienced this? I have now lost 7lbs. in 3 months, and when I do eat it passes right thru! I am really weak at times so I am looking at some clinical trials, sine they are saying there are less side effects, but I haven't heard anything officially yet. But on the brighter side I am still here, and continue to be POSITIVE, and the key word BRAVE. Good luck to you........ Marcia > --- On Mon 07/11, Brenda Morelli < [EMAIL PROTECTED] > wrote:From: Brenda Morelli [mailto: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Mon, 11 Jul 2005 19:38:08 -0000Subject: [CML] Re: Help (Nancy)Nancy,This is one of the most common side effects of Gleevec (cramping). I had the same effects as you in the beginning, calves and feet/toes. the only thing that would help was walking them off and it would sometimes be 15 or 20 minutes before they would stop. After 6 months and as time has passed the cramping has lessened and are further and further a part in occurrences. Potassium and calcium may help. I just hope you don't get one of those big ones when your sleeping. I had that happen to me several times and it was so annoying and disorienting. Good luck and I hope the cramping improves soon. Take care,Brenda--- In [email protected], nancy sprowl wrote:> I just woke up with a terrible cramp in my left calf.I hang on the the wall and tried to work this > cramp out,screaming in pain.It seemed like forever,but in about 10 minutes the pain started to stop.Then I got a foot cramp in my right foot .worse then the left leg.I cant sit, the pain is unbearable.I tried to move around applying pressure on the foot,screamin in pain,praying for the pain to go away.The pain was so bad I was crying.Finally it stopped ,but I am so exhausted from those 20 minutes of torture.> Does anyone have any help for this? I never had cramps and pain like this before the "gleevec".> Thanks.....Nancy> > > --------------------------- ------> Sell on Yahoo! Auctions - No fees. Bid on great items.New! Sign up for local CML support group meetings in your local community at http://cml.meetup.comApply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML > (Chronic Myelogenous Leukemia Support List) ------------------------ ---------Part Of CMLHope.ComAn International Community Of CML PatientsFor more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: cml- [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML ?---- LSpots keywords ??---- HM ADS ? > > > YAHOO! GROUPS LINKS > > Visit your group "CML" on the web. > To unsubscribe from this group, send an email to: CML- [EMAIL PROTECTED] > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > > > > _______________________________________________ New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
