Thanks Sue, you always seem to know what to say,,,,you seem to know what is making me angry..I really hate when people say "they understand" it drives me off the deep end. I have had to hold off on my career because I am just too angry and can't think straight every question seems irrelevant to me. I can't seem to get my anger under control....for some reason I was doing well but now I seem to have dipped again.......I am soooo stressed, its a different stress than work stress and it just makes me tired...
"S. Folle" <[EMAIL PROTECTED]> wrote:
"S. Folle" <[EMAIL PROTECTED]> wrote:
Steve,When my daughter got diagnosed someone told us to get all the information we needed regarding the disease and treatment and find out the options and when we had all that, we would be able to continue living our lives. At that time, when CML consumed every waking moment for me, I never thought we would move forward in our lives and have any peaceful days or any dreams or hope for the future. The first day that I didn't think of it the moment I opened my eyes, I almost felt guilty. I was angry at people who had "problems" in their lives that weren't life-threatening. I didn't want to hear about anyone who had a serious illness and recovered because MY daughter has an illness with no cure. I didn't want anyone to tell me they understood, because this was MY deal with MY family and how could anyone else possibly know our feelings, our pain, and are heartache? With time, I am getting better and you will, too.Keep the communication open with your wife, hold her hand, and let her vent her feelings. You guys are going through unbelievable stressful times with the new baby and a toddler and a sick wife. As she adjusts to the Gleevec, in a couple of months, she will start to regain strength and feel better. My daughter now is feeling stronger everyday and the bone pain is diminished and the nausea doesn't happen as often. We have hope for a long future as new medications are tested.It isn't a piece of cake, but it isn't the devastating chemotherapy that people go through with other cancers. It is a disease where you are given the gift of time. That is a blessing.It will get easier, Steve. I know it must be terrible to have to go to work everyday and try to be interested in what is happening professionally. At first, my daughter's husband would not talk to her about the long term and would bury his head in his work. Her kids would say, mom please don't go back to the hospital because all dad does is cry.Everyone copes in their own way. The Leukemia & Lymphoma Society has great support groups.My best to you and your wife and your children.Sue__________________________________________________
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