[CML] Terry in Texas

[lmgleaton]

well, went to the oncologist yesterday.....when I get my scanner hooked up (we are in the middle of moving) I will scan Terry's bloodwork results.  The Fish test wasn't good...out of 200 cells, 101 showed bad.  He is on 600mg of Gleevec right now   Terry will do the 1 year (can it really be a year since he was diagnosed????) bone marrow biopsy on Nov 17 AFTER we finish moving....then they are going to do another big blood workup, but I don't really understand why they are doing it,  other than it will be about 10 weeks at that point since he went from 400 back to 600 mg on the Gleevec.   I can't begin to share with you all how bummed we really are.  Moving is a real PAIN with a hubby who is limited both physically, mentally, and spiritually right now.  We weren't surprised with his blood test results, just frustrated that we can't get Terry stabile.  His white cell counts were in the 3's, so not too worried yet, but with moving, he is so exhausted.....on Sat night, I thought he was going to start crying he was so tired after such a full day of packing & hard work.   yes, for those who don't know, we would love a 2nd opinion, but MD Anderson would not accept my dh as a patient...we do not have insurance & unable to begin to pay the medical bills that are in excess of $100,000 now, so we are grateful that he is able to receive any care at all, much less the Gleevec when we can get it from Novartis   I would love to have an offlist discussion with those who are not insured and try to help each other obtain passable medical care.  Even if Terry had been insured, we would never have been able to pay the 20% or co-pays even, so I don't know it makes that much difference other than the medical folks would get some money for their troubles.    The FISH test alone is over $500 & we owe a company called Dianon Systems and also Quest Labs thousands of dollars each.  Each has turned us over to numerous collection agencies, etc.....our concern is if they will no longer process Terry's lab results at some point, etc.  I am curious about other's experiences.   also, has anyone had the ability to obtain medical insurance?   We did speak with a high risk pool with the state of Texas, but they said it would be over $300 plus just for Terry, AND that they would NOT cover anything to do with the leukemia.      with all that has happened, Terry hopes to struggle with trying to work a full day in order to earn more money.....much less insurance   oh, his Gleevec "eyes" have gotten so bad that his eyes are weeping & goopy.  Doc prescribed an antibiotic ointment for the redness at the corners of his eyes that have sores.   Our Doc wanted me to ask you all what are the best suggested treatments, anything we can do over the counter, etc.  Otherwise, he is referring him on to an eye doctor.   Lora New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML YAHOO! GROUPS LINKS  Visit your group "CML" on the web.    To unsubscribe from this group, send an email to:  [EMAIL PROTECTED]    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.