[CML] Terry in Texas

[lmgleaton]

well, we got worse news today....they got the cytogenetics??? report back, and he is still producing leukemia cells.  So, now they want Terry to bump from 600 mg to 800mg of Gleevec per day.  The nurse was supposed to contact Novartis to get them to send more so he wouldn't run short before the end of the month   Terry was disappointed, but fairly stoic.....we are now awaiting an appt with oncologist to let them tell all this in person.  I now have my scanner hooked up, so that we can get a copy of the results, share it with this group, & hopefully somebody explain this all more simply.   btw....a new member mentioned that her doc has said that many folks should reach remission after just 3 months of taking Gleevec.   Is this the story for most of you??   Why I ask is that Terry has now been on Gleevec for a year...is "sickly", hurts from the bone & joint pain all the time, etc......so wondering if many of you are doing lifetime 800mg per day, or less for maintenance???   Lora New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML SPONSORED LINKS Chronic myelogenous leukemia Leukemia treatment Cml YAHOO! GROUPS LINKS  Visit your group "CML" on the web.    To unsubscribe from this group, send an email to:  [EMAIL PROTECTED]    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.