Lynn, Welcome to the group. Marisa is so lucky to have a wonderful, loving aunt to help find information on CML for her. You couldn't have come to a better place for knowledge. There are wonderful things going on in the fields of CML research and treatment right now. If you have any questions, just ask. People in the group have "have there, done that"... so to speak and are happy to share. I find it terribly sad that children have to deal with these kinds of problems, but hopefully there will be a "cure" soon.
Gay Bratton San Antonio, TX DX June, 1998 -----Original Message----- From: [email protected] [mailto:[EMAIL PROTECTED] On Behalf Of lynn41068 Sent: Sunday, November 06, 2005 6:35 AM To: [email protected] Subject: [CML] 11 year old niece dx 9/05 Hi, My niece was dx in Sept. we believe in the accelerate stage. She is currently on 600 mg of Gleevec and seems to be doing well. Dr. mentioned at last visit about doing a BMT since one of her sisters is a perfect match 10/10. Not sure how I feel about that. She is being treated at MSKCC in NYC and that is where she had her second BMB done last week. We are waiting for resutls. She is the oldest of my brother's 5 children. Her name is Marisa. I thank God that she is responding well to Gleevec. At dx her wbc was appro. 170,000 and is now at 2.4. She was also dx with blast's in blood and marrow. She is a sweetheart. She is not able to go to school, dr.'s orders since her ANS is low .7. I knew nothing about CML prior to her dx. The internet has been a wonderful source of knowledge of me. My SIL and brother know that I read about CML and share the information I gather with them. Just wanted to introduce myself. I pray for everyone. Love, Lynn NJ (aka, Marisa's Favorite Aunt) New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links ------------------------ Yahoo! Groups Sponsor --------------------~--> Dying to be thin? Anorexia. Narrated by Julianne Moore. http://us.click.yahoo.com/pL1caD/sbOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
