My question to you is how do you get the Gleevec while on 
Disability?  My insurance through work pays for my RX so If I went 
on disability I would lose my insurance.  I figure I have to work 
till I die! 

Terri


--- In [email protected], "Patricia" <[EMAIL PROTECTED]> wrote:
>
> For those of you finding yourself not able to continue to work, you
> are not alone. I didn't work a day after being told I have CML. In
> hindsight, my job performance sucked prior to diagnosis and I 
started
> missing a lot of days. It was all I could do to get through the 
day. I
> knew I had something seriously going on with my body and in spite 
of
> my fears, I just was too scared to know. My first fear thought was
> cancer and my gut feeling was right...lucky for me I got a kind 
that
> can be controlled.
> 
> As for disability, I was terrified in the beginning. I kept asking 
my
> doctor about it and he'd say well, lets see how you do in a month 
or
> two. Well, in a month or two, I'm gonna lose everything I've worked
> all my life to have. My husband became disabled prior to myself 
and it
> took him 3 years to get his, mostly because he had a suck lawyer. I
> knew if we had to wait that long, we would lose everything. I gave 
up
> on the doctor and filed in May 2004 and got my first check in July 
2004
>  (I was diagnosed Nov. 28th 2003) I was totally shocked I had been
> approved so easily. I don't know if it is like this in every state,
> but in TN, if you apply and are denied, you can then take those 
denial
> papers to a disabilty lawyer and the lawyer will fight for you to 
get
> it. They get paid when you do. I really went through some emotional
> issues after being diagnosed as disabled. I felt like I was taking 
a
> handout, that I was just worthless. I've since learned that it is 
not
> a handout, it's my money that I've paid in out of every check I 
earned
> for the past 20 years. I am not worthless, I just can't work right
> now, but there are other things to do in life. I remember being at
> work thinking I wish I didn't have to work, I'm sick of 
working...and
> then when I wasn't able to work...it's God, how I wish I could go 
back
> to work. The average human is never satisfied. As we southerners 
say,
> "you don't miss your water, until your well goes dry." 
> 
> I don't dwell on it anymore....I just take one day at a time and 
try
> to enjoy it. It is nice to not have to get up early in the 
mornings,
> make that commute to work, have to be nice to everyone you come in
> contact with even tho you are so sick and hurting so bad, you just
> want to cry. Good Luck to those of you trying for SS.
> 
> Love, Peace, Hope & Prayers, Pat
>






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