-Terri, I guess it depends on what state you're in. I am on state
(TN)funded Tenncare program and it pays for my meds right now. They
are trying to eliminate it altogether so don't know what I will do if
that happens. Call or look up Department of Human Services in your
state or county. I know if you get SS disabilty, that makes you
eligible for Medicare but that only pays doctors and hospital bills at
the moment. They are starting a program under Medicare that will pay
for some meds but I don't know a lot about it.
Love, Peace, Hope & Prayers, Pat

-- In [email protected], "terriusa2004" <[EMAIL PROTECTED]> wrote:
>
> My question to you is how do you get the Gleevec while on 
> Disability?  My insurance through work pays for my RX so If I went 
> on disability I would lose my insurance.  I figure I have to work 
> till I die! 
> 
> Terri
> 
> 
> --- In [email protected], "Patricia" <[EMAIL PROTECTED]> wrote:
> >
> > For those of you finding yourself not able to continue to work, you
> > are not alone. I didn't work a day after being told I have CML. In
> > hindsight, my job performance sucked prior to diagnosis and I 
> started
> > missing a lot of days. It was all I could do to get through the 
> day. I
> > knew I had something seriously going on with my body and in spite 
> of
> > my fears, I just was too scared to know. My first fear thought was
> > cancer and my gut feeling was right...lucky for me I got a kind 
> that
> > can be controlled.
> > 
> > As for disability, I was terrified in the beginning. I kept asking 
> my
> > doctor about it and he'd say well, lets see how you do in a month 
> or
> > two. Well, in a month or two, I'm gonna lose everything I've worked
> > all my life to have. My husband became disabled prior to myself 
> and it
> > took him 3 years to get his, mostly because he had a suck lawyer. I
> > knew if we had to wait that long, we would lose everything. I gave 
> up
> > on the doctor and filed in May 2004 and got my first check in July 
> 2004
> >  (I was diagnosed Nov. 28th 2003) I was totally shocked I had been
> > approved so easily. I don't know if it is like this in every state,
> > but in TN, if you apply and are denied, you can then take those 
> denial
> > papers to a disabilty lawyer and the lawyer will fight for you to 
> get
> > it. They get paid when you do. I really went through some emotional
> > issues after being diagnosed as disabled. I felt like I was taking 
> a
> > handout, that I was just worthless. I've since learned that it is 
> not
> > a handout, it's my money that I've paid in out of every check I 
> earned
> > for the past 20 years. I am not worthless, I just can't work right
> > now, but there are other things to do in life. I remember being at
> > work thinking I wish I didn't have to work, I'm sick of 
> working...and
> > then when I wasn't able to work...it's God, how I wish I could go 
> back
> > to work. The average human is never satisfied. As we southerners 
> say,
> > "you don't miss your water, until your well goes dry." 
> > 
> > I don't dwell on it anymore....I just take one day at a time and 
> try
> > to enjoy it. It is nice to not have to get up early in the 
> mornings,
> > make that commute to work, have to be nice to everyone you come in
> > contact with even tho you are so sick and hurting so bad, you just
> > want to cry. Good Luck to those of you trying for SS.
> > 
> > Love, Peace, Hope & Prayers, Pat
> >
>







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