[CML] Re: Question about a side effect???

Sat, 12 Nov 2005 16:32:52 -0800

Alicia, I hate to inform you but whatever doctor told you this is full of s**t. You need a cml specialist, someone  who is expereinced in cml. I've been taking vicrophen since my diagnosis. I don't have to take 3 a day as prescribed most days, and some days I don't take any at all but I do have them if needed. My bones, joint, muscles ache and hurt so that I am just miserable. I hope that you can find a more understanding and more knowledgeable doctor soon. Tyenol #3 are a weak pain med but better than nothing if you have nothing else. My vicrofen have codeine and ibuprofen in them...no tyenol.
Love, Peace, Hope & Prayers, Pat
--- In [email protected], "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:
>
> My doctor actually tried to tell me that the bone/joint/muscle pain doesn't have anything to do with the CML or gleevec. I was so mad. Anyway, I got another doctor in the same practice at my appointment on Thursday and he didn't seem to know anything about it either but he said that sometimes with CML while your bone marrow is re-arranging you can get strange sensations. He gave me some T3 (tylenol with codeine) and I just took that. It took the pain away but left me loopy in the process.
> Hopefully your doc can perscribe that for you.
> :{
> Alicia
>
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