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Getting a physician with experience in treatment CML is one of the most
important things you can do. If they are telling you to take Tylenol that is not
a good sign since it can cause serious problems in some CML patients and is not
recommended for use by the drug company Novartis.
Rob
----- Original Message -----
Sent: Friday, November 18, 2005 5:09
PM
Subject: [CML] eyelashes
Hi, I'm not yet a month into my treatment with 400mg
Gleevec and my dr. does not repond to any of my symptoms. She also told
me to take tylenol for my cramping. Has anyone out there lost their
eyelashes??? I have, but no other place on my body! It looks a
little strange but eyeliner covers for its absence. I am about 90 miles
from Dana Farber in Boston and even though it is inconvenient, I'll make the
trip by bus if I can find a competent CML specialist. It's worth
the extra effort. I found my thyroid cancer specialist by a listserve in 1998
when I was diagnosed and he's the best there is. The drs. here in
Southern Maine almost killed me before I found him. Sue T.
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