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That is good news on the the AMN and VX trials. That would be a good route
for any in the group to explore who may be considering a trial.
Rob
----- Original Message -----
Sent: Friday, December 16, 2005 4:47
PM
Subject: [CML] MDAnderson Trial
Information - VX and AMN107/Gleevec combo trials -
Hi all.
I just returned from
MDAnderson. It was a whirlwind trip - as
getting there was quite
challenging. The Houston airport closed
(which is rare) on
Wednesday due to very bad storms and flooding - so
I was delayed by about
three hours in getting there.
All went well - as usual and it
was an uneventful trip.
However, I spoke with Dr. Giles yesterday and
he wants me to get the
word out to the CML community. He opened a
new trial yesterday for
CML patients that have lost their response to
Gleevec . . . (maybe
someone who is FISH positive, or is no longer
negative on cyto). He
is looking for recruits if anyone has the
need. The trial consists
of combining Gleevec with the new AMN107
compound. It sounds very
exciting and is yet another option
for all of us.
More exciting however, is the VX trials - which I
believe Anjana has
posted about on the Asian list. Dr Giles said it
shows incredible
promise for eradicating the dreaded T3151 mutation - that
to date -
no other compound appears to have any effect on. He
is recruiting
for this trial as well.
If you have any interest, you
can contact his PA - Mary Alma Welch at
[EMAIL PROTECTED] You
can also reach her at MDAnderson via the
leukemia clinic - at
713-792-8760.
This is an amazing time for CML patients - with many
options to look
at should we need it!
I'll continue to keep you all
posted on my results. It was a
delightful time to be at the
hospital. Everything was awash in
Christmas and holiday
finery. Each floor was decorated with holiday
decorations,
carolers were singing and even 'Santa' visited in the
bone marrow clinic -
handing out candy canes, cookies and juice. It
made a difficult day
much more tolerable. The facility truly goes
out of their way
to make every patient feel special!
Hugs to all of
you!
Love,
Barb
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