Thank you so much for the hopeful, promising post! It really made me feel better. I pray that it works. Again, thanks :)
--- In [email protected], "Rob" <[EMAIL PROTECTED]> wrote: > > That is good news on the the AMN and VX trials. That would be a good route for any in the group to explore who may be considering a trial. > > Rob > ----- Original Message ----- > From: bheathcote201 > To: [email protected] > Sent: Friday, December 16, 2005 4:47 PM > Subject: [CML] MDAnderson Trial Information - VX and AMN107/Gleevec combo trials - > > > Hi all. > > I just returned from MDAnderson. It was a whirlwind trip - as > getting there was quite challenging. The Houston airport closed > (which is rare) on Wednesday due to very bad storms and flooding - so > I was delayed by about three hours in getting there. > All went well - as usual and it was an uneventful trip. > > However, I spoke with Dr. Giles yesterday and he wants me to get the > word out to the CML community. He opened a new trial yesterday for > CML patients that have lost their response to Gleevec . . . (maybe > someone who is FISH positive, or is no longer negative on cyto). He > is looking for recruits if anyone has the need. The trial consists > of combining Gleevec with the new AMN107 compound. It sounds very > exciting and is yet another option for all of us. > > More exciting however, is the VX trials - which I believe Anjana has > posted about on the Asian list. Dr Giles said it shows incredible > promise for eradicating the dreaded T3151 mutation - that to date - > no other compound appears to have any effect on. He is recruiting > for this trial as well. > > If you have any interest, you can contact his PA - Mary Alma Welch at > [EMAIL PROTECTED] You can also reach her at MDAnderson via the > leukemia clinic - at 713-792-8760. > > This is an amazing time for CML patients - with many options to look > at should we need it! > > I'll continue to keep you all posted on my results. It was a > delightful time to be at the hospital. Everything was awash in > Christmas and holiday finery. Each floor was decorated with holiday > decorations, carolers were singing and even 'Santa' visited in the > bone marrow clinic - handing out candy canes, cookies and juice. It > made a difficult day much more tolerable. The facility truly goes > out of their way to make every patient feel special! > > Hugs to all of you! > Love, > Barb > ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital. http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
