Rob: I stopped the gleevac, and was on nothing. The Philly marker was gone, and the oncologist never told me about the risk of stopping gleevac, until a year later (after I stopped taking it). I have been off of the gleevac for a total of one year. I restarted it a little over two months ago, my numbers returned to "really good" as the nurse said, and now I am having side-effects that I never had the first time that I was on the drug. Thanks for asking, I hope you can offer some insight. Katsie.
--- In [email protected], "katsietoo_99" <[EMAIL PROTECTED]> wrote: > > I am sick again. I started the gleevac seven weeks ago, and my count > went from 7.5, to the low 3's,...I know I was still under the 10 > number, where the oncologist considers you safe, but he tested me, and > found the Philadelphia marker has returned, from a year ago. A year > ago, I stopped using gleevac, and then after the oncologist told me > that it may not work, if I try to use it again, I was frightened, and > restarted the medication. So far, it appears to be working, since the > numbers have dropped, as indicated above. > > About a month ago, I thought I had the flu, and went to the hospital. > I have other conditions, fibromyalgia, Sjogren's, chronic asthma, > connective tissue disorder, and chornic fatigue. I was feeling > terrible. Really tired, and my inhaler, used for asthma, didn't seem > to relieve my trouble breating. My nose was stuffed up, even after > taking my pill for allergies. > > The hosptial told me I was still under 10, seven weeks ago, and that I > probably had developed a bronchial infection, however, the hospital > could not truly tell whether or not that was the problem. I took an > antibiotic, for five days, which works for two weeks, and I began to > feel better. The strange part, is that I have had bronchial > infections all of my life, and this did not feel like a bronchial > infection. > > Now, the same symptoms are back. I forgot to mention that my back > (middle), hurts really bad, and that rib on the right that I was told > by the hospital doctors that I fractured, is hurting again. I haven't > lifed, or done anything to cause this pain to return. Plus, I am > afraid of the flu, and since they weren't sure it was a bronchial > infection the first trip to the hospital, I am wondering, could I be > suffering from a side-effect of the gleevac? > > Unfortunately, I have not been able to get a flu shot. I have been > trying, but everytime a clinic is set, it gets canceled, and my > doctor's offices do not have it. They keep saying it's production, > delivery, etc. I just don't believe them anymore. I just don't think > there is any left. > > Also, I cannot eat meat,..I cannot stand the smell, or sight of it. > This has been going on for about a week. I got this sick feeling > today. When I saw my oncologist, last week, he gave me a script for > nausea, but I do not feel nauseated, until I smell food. > > I am so tired of calling the doctor, though I know that I must,..but I > just wondered if anybody else was suffering the same symptoms? > > I took an expectorant early today to try to fend off another bronchial > problem, but it doesn't seem to be doing anything, yet. > > I am just scared. It seems like everytime I visit a doctor's office, > I get bad news, and I would like to be prepared (a little more), > before I have to face the oncologist again, this week. Thanks for > reading this, and if you can help, please feel free. Katsie. > ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital. http://us.click.yahoo.com/DbF9UC/lbOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
