Sue,

Thank you for your input.  I didn't realize that I needed a different
specialist.  Actually, my general physician was the one who sent me
back to that same oncologist.  Nobody told me any differently, so I
went without a thought.  

I live near Pittsburgh, PA, but from what I read here, I feel like I
live in the sticks.  It's like you all are from the "big city" and I
am the "country hick".  I really do appreciate this site.  If I hadn't
had the opportunity to have these types of exchanges, I would go along
thinking everything is just the way it has to be, and I would be
living in the dark, as well feeling sick.  

I re-set my appointment with the new cancer center in Pittsburgh, for
next month.  The nurse I spoke with sounded very much like all of you
do, on the board.  I feel much better knowing more about what is
happening to my body.  My oncologist tells me nothing, and if I don't
know any better, or forget to ask, he doesn't offer.  

Again, thank you.  And, thank you for explaining why I am taking the
anti-acid,...lol.  I just read that, and laughed.  I cannot believe I
am paying this man, I should be paying all of you!  Thank you so much!
 Love, Kat.  

--- In [email protected], "S. Folle" <[EMAIL PROTECTED]> wrote:
>
> Kat,
>   The "anti-reflux" pill helps to keep from developing gastritis, an
inflammation of the lining of the stomach and/or esophagus.  That is
another reason you want to take your Gleevec with a lot of food.  My
daughter has been hospitalized twice for severe gastritis since May. 
Because of the bloating and nausea, she was taking it at bedtime so
she could sleep it off.  The problem was, she was taking it without
food.  She was lucky she didn't develop severe ulcers and bleed.  With
the anti-reflux medication, she is starting to have fewer problems.
>   My own feelings are that if your doctor is a specialist in breast
cancer, he isn't the person to treat you for CML.  Go to a larger
center and ask the question of how many CML patients they treat. 
Especially with all the choices that will soon be out of clinical
trials, you want to go to someone who understands the differences
between the new drugs that will follow Gleevec.
>   You can call the Leukemia & Lymphoma Society in your area.  They
keep track of the kind of blood cancers people have and where they are
treated and can help with some recommendations.  At least they do that
here.  That are a great organization.
>   Sue
> 
>               
> ---------------------------------
> Yahoo! Photos
>  Ring in the New Year with Photo Calendars. Add photos, events,
holidays, whatever.
>






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