Hello. I don't post much, just when I think I'm going a little crazy which is most of the time. I was diagnosed in August 2005 with CML at Mayo in MN. To make a long story short from the middle of Septmeber until the middle of December my anc and white count were low and I was on and off the drug. Well in the middle of December my local onc doc had me do 400 mgs of gleevec every other day. My counts started to go up but so did my platelets. So my local doc got concerned and called Mayo and they sent a kit to my local hospitla to draw for a FISH test this was at the beginning of March. At this time I had found out at diagnoses that my cells were 98% luekemic and when they re drew the FISH in October they were at 3.4%. So when they re drew the test at the beginning of March they were now at 20% so I started back on the 400 mgs everyday. At the end of March I went to Mayo for a 6 months visit and they re drew the test again now it had gone to 28%. Mayo said in no way should I go off the 400 mgs every day. If my white count and anc crashed that they would give me shots for it. Well, I'm working on my 5th week of being on the med every day at 400 mgs. My platletes had come down from over a million to in the 5000's. Well at yesterday's lab work which I got called on this morning my anc was at 504 Mayo said if it reached 500 to start white cell booster shots. Also with my low count was my platelet count over 7000. Mayo had told me to watch for my platelet count to come down that that would be a sign that the med was working for me. They told me at the end of March that they counldn't say that the med had failed me because I had not been on the proper dose. That they would watch me for 3 months then I would go back to see them. So here's why I'm freaking out so much ~ the platelet count. Why is it going up again, is the med NOT working. I have been so upset all day today that I had to leave work. My local onc didn't say anything about it, I had to go for the shot and he told me that they'd see my next week for my weekly blood work. I just keep thinking about what Mayo had said about the platelet count am I crazy to be this worried??? Has anyone ever had this happen? I would really like to get off this roller coaster ride, I've been on it way too long!
Thanks for listening, Sheila --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
