Just wanted to update everyone on the question I had posed earlier this month...
It turns out that the lymph nodes were a progression of the CML, not necessarily lymphoma, and I ended up hospitalized with blast crisis last week. (Lymphoblastic crisis, which is apparently less common of a presentation, but does happen). They are awaiting results of peripheral blood to confirm that this is BCR/ABL positive, but there is no reason to believe that it is not.
The good news is that I have many potential donors for a BMT, should be able to be restored to chronic phase, and was able to enjoy a vacation prior to this happening. Thanks for everyone's concern.
Melody
anjana <[EMAIL PROTECTED]> wrote:
anjana <[EMAIL PROTECTED]> wrote:
Dear Melody,
Thank you for updating us on your CML. The 6-month and 1 year
milestones on Gleevec are important. Our doctor never did a 3-month
test but we requested it and he did a FISH test. So, it is quite all
right to have tests at the 6-month and 1 year marks. And some doctors
start doing PCR testing when you are have no Ph chromosome in the
marrow cells tested, that is from a BMA cytogenetics study. I am
keeping fingers crossed for a great result from your BMA. Keep us
posted. And let us know about the lymphoma as well, I know how you
feel and I just wish that you conquer both diseases.
Kind Regards,
Anjana
caregiver to Roy
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