Nobody said we nor I dont hope for a cure, we just are realistic enough to acknowledge that at this moment in time there is not one. As Anjanna said you are talking about differant kinds of Leukemia and we have CML. It is not semantics I am talking about. When Terry's Dr. told him that he was probably talking about prognosis which is probably what Terry asked about.
After I was told I had CML the first question out of my mouth was "what is my prognosis?" My Dr. told me these words exactly" without treatment you have maybe three years to live, with treatment you have maybe five. NOW, he was not trying to scare me or be morose he then proceeded to fill my heart with hope as he told me about a new wonder drug called Gleevec and to tell me that they had had such great success with it. That if it failed that there were newer better drugs in the pipeline so to not loose hope. I also discussed BMT with him but the person that most influenced my descion about that was my Neurologist who also has CML. He had a perfect match in his brother and has had a BMT and then several mini BMT's which have all failed him! He has had the most luck and best success on Gleevec and now Sprycell. He is post diagnosis 8 years now. And he does not reccomend BMT!
katy
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xanga.com/katybug45
xanga.com/katybug45
-------------- Original message --------------
From: "Cheryl-Anne" <[EMAIL PROTECTED]>
>
> Hi Katy,
>
> No, actually he isn't being realistic. Because if he can predict with
> that much certainty that he knows what the "rest of your life" means
> then please ask him to pick you lottery numbers and then you should buy
> a ticket. Perhaps what he meant to say or what you mean to tell us is
> that he said "for now, this is the treatment". Otherwise, all of those
> researchers working in labs and all those other clincial trials should
> just shut down now, because there will be no cure? Perhaps this is all
> just a case of semantics?
>
> As for the discussion on BMT, that was intended for children not
> adults. The success rate is much better for children.
>
> I a m surprised that you think having a conversation about a potential
> cure would be "sugar coating things and giving you false hope". My
> goodness where would we all be if it were not for the hope of a cure?
>
> I can't imagine how dreary life would be if I didn't have hope about a
> number of things, not just CML.
>
> As I mentioned I work in marketing in the health care industry. For
> the moment I am working with products for patients who have long term
> chronic disease like venous leg ulcers. Guess what? We cure them!
> When we cure them we do have to keep following up with them, and there
> are certain life style changes they have to make, but they get their
> life back, and like my fellow co workers - "we are really proud of what
> we do!"
>
> Katy I can't imagine a world without hope!
>
> Cheers and Hugs to you too!
> Cheryl-Anne
>
> >
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