Hi Katy,

No, actually he isn't being realistic.  Because if he can predict with
that much certainty that he knows what the "rest of your life" means
then please ask him to pick you lottery numbers and then you should buy
a ticket.  Perhaps what he meant to say or what you mean to tell us is
that he said "for now, this is the treatment".  Otherwise, all of those
researchers working in labs and all those other clincial trials should
just shut down now, because there will be no cure?  Perhaps this is all
just a case of semantics?

As for the discussion on BMT, that was intended for children not
adults.  The success rate is much better for children.

I am surprised that you think having a conversation about a potential
cure would be "sugar coating things and giving you false hope".  My
goodness where would we all be if it were not for the hope of a cure?

I can't imagine how dreary life would be if I didn't have hope about a
number of things, not just CML.

As I mentioned I work in marketing in the health care industry.  For
the moment I am working with products for patients who have long term
chronic disease like venous leg ulcers.  Guess what?  We cure them!
When we cure them we do have to keep following up with them, and there
are certain life style changes they have to make, but they get their
life back, and like my fellow co workers - "we are really proud of what
we do!"

Katy I can't imagine a world without hope!

Cheers and Hugs to you too!
Cheryl-Anne


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