just wanted to say that Mayo does a spectacular job. I was diagnosed
there with only 19,000 white count, put on Gleevec after bmb confirming cml and
have been at Mayo throughout. It will be three yrs dec 3rd since my
diagnosis. Wonderful doctors who really listen.
chris in minn
----- Original Message -----
Sent: Wednesday, September 27, 2006 12:20
PM
Subject: [CMLHope] Re: Randy fish
test
Mayo ought to be pretty good, although I have not heard
anything
specific to CML from there. You might look into having the
test
analyses done at Mayo since it is likely to have superior equipment
and
staff training. As I said before, it is easy to ship blood, and,
even
if the blood is 2-3 days old, the quality is still good enough for
the
tests.
Randy should look into how far you can push your
insurance company.
Fortunately for me, I was not DX until after I was
eligible for
Medicare. Medicare and my Blue Cross Medicare supplement
pay for
everything in full. I also have a drug policy. 90 days
worth of
Gleevec at 600mg/day costs me $30. Before I went on
Medicare, I had a
private policy as a self-employed person. It cost a
fortune and paid
for little. I empathize with anyone in that
position. I've come to
believe strongly that the US health care
system is
unfair.
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