Hi Anjana,
Yes he is sure, he had me go off for two weeks to see if the pain in my arms and legs went away then restart it. It went away within about three days and when I restarted within one or two days was coming back so he told me to stop taking gleevec completely. He just worries me. He is going to leave me off for two months. I just dont understand what he is doing. My test has been at zero for a year, I dont know if you remember or not but a year ago it was positive and he raised me up to 600 mg of gleevec (I am Laura by the way from the asian group in case you didnt recognize me) and it went back down to 0. Now it is positive again but he wants to wait to see in two months if it is more positive? How can it "hold" if I am not on anything to hold it back? I dont know. I am kinda stuck here between a rock and a hard place.
Hugs,
Katy
--
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-------------- Original message --------------
From: "anjana" <[EMAIL PROTECTED]>
>
> Dear Katy,
>
> Maybe you are just barely above detectable by the PCR and your onc
> wants to see if that holds or the PCR climbs up further. I do think
> you need to treat the CML, Katy, and if you are intolerant to Gleevec,
> you may need to go on Sprycel. Its very bad if the disease comes back
> aggressively. Is your doc 100% positive that your side-effects are
> from Gleevec? When you are off Gleevec, you do not have the
> side-effects?
>
> Love,
> Anjana
>
>
>
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