Group, If a molecular study (FISH) takes a long time to come back from the lab, does that mean there's a problem with it? I'm getting worried as it's been almost 3 months for my last one, taken at the end of August 06.
Also, I've heard about the 18-month marker for CMLers on Gleevec (that it can take 18 months to achieve molecular remission). I have been on Gleevec since April 05 (I was increased from 400mg to 600mg in June 05), but no cytogenetic response was seen until I was put on 800mg in January 06. Will they start counting the "18 months" from when I started taking my current dosage in January? Or is it still from April 05? Because if so, that means I don't think I quite 'made it,' even though I'm doing better now (in June, my study came the quote, "excellent evolution," and in August, I was showing a Ph of 5.7, down even more). Can they keep someone on Gleevec even if they are having a suboptimal response? Am I even having a suboptimal response? One more thing...can your Ph levels flucuate, even a little, during treatment? I've had a stressful summer with moving to a new palce and everything. I'm a creature of habit, not one of change, and I hope this hasn't comprimised my recovery. If my Ph levels do go up, can they come back down? What I'm trying to ask is if I get undesirable results from this most recent study, is there a chance I can still continue on my treatment successfully? I'm sorry about bombarding you with questions, I'm just going through a bit of a strange time. I've been feeling differently about things, and I'm ready for some answers to some of my hard questions. Even if things don't go as I think they 'should,' I realize there are other treatment options out there. It's time I quit stressing and start trying to take control of this thing, something I have always been too scared to do. I'd appreciate any feedback. Anything at all. Sincerely, Chrissy --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
