Chrissy I always get my results on a FISH in 7-10 days. Your Dr. should already have your results. Are you waiting for them to call you? If so DONT call them! Because Dr.'s office's are often very busy and sometimes they forget.
Hugs,
Katy
--
DX: 10/03 400mg gleevec
1st remission: 12/03
#677 in Zero Club
1st relapse: 6/05 raised to 600mg gleevec
2nd second remission: 8/05
2nd relapse: 6/06 to current
Taken off of gleevec 6/06
xanga.com/katybug45
DX: 10/03 400mg gleevec
1st remission: 12/03
#677 in Zero Club
1st relapse: 6/05 raised to 600mg gleevec
2nd second remission: 8/05
2nd relapse: 6/06 to current
Taken off of gleevec 6/06
xanga.com/katybug45
-------------- Original message --------------
From: "Chrissy" <[EMAIL PROTECTED]>
>
> Group,
>
> If a molecular study (FISH) takes a long time to come back from the
> lab, does that mean there's a problem with it? I'm getting worried as
> it's been almost 3 months for my last one, taken at the end of August
> 06.
>
> Also, I've heard about the 18-month marker for CMLers on Gleevec (that
> it can take 18 months to achieve molecular remission). I have been on
> Gleevec since April 05 (I was increased from 400mg to 600mg in June
> 05), but no cytogenetic response was seen until I was put on 800mg in
> January 06. Will they start counting the "18 months" from when I
> started taking my current dosage in January? Or is it still from April
> 05? Because if so, that means I don' t think I quite 'made it,' even
> though I'm doing better now (in June, my study came the quote,
> "excellent evolution," and in August, I was showing a Ph of 5.7, down
> even more). Can they keep someone on Gleevec even if they are having a
> suboptimal response? Am I even having a suboptimal response?
>
> One more thing...can your Ph levels flucuate, even a little, during
> treatment? I've had a stressful summer with moving to a new palce and
> everything. I'm a creature of habit, not one of change, and I hope
> this hasn't comprimised my recovery. If my Ph levels do go up, can
> they come back down? What I'm trying to ask is if I get undesirable
> results from this most recent study, is there a chance I can still
> continue on my treatment successfully?
>
> I'm sorry about bombarding you with questions, I'm just going through a
> bit of a strange time. I've been feeling diffe rently about things, and
> I'm ready for some answers to some of my hard questions. Even if
> things don't go as I think they 'should,' I realize there are other
> treatment options out there. It's time I quit stressing and start
> trying to take control of this thing, something I have always been too
> scared to do.
>
> I'd appreciate any feedback. Anything at all.
>
> Sincerely, Chrissy
>
>
>
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