Dear Sandy, Are Randy's platelet counts 87,000? Nowadays, doctors let platelet counts go as low as 30,000-40,000 before stopping Gleevec. Our doctor gives platelet transfusions only when platelet counts are around 15000-20,000. So, don't worry, Randy is still okay. Yes, I am sure that the higher dose is responsible for the low counts, it is quite common in 800mg patients and some can take quite long to recover from the low counts. So, please hang in there, Sandy and tell Randy the same. The good news is that the FISH is now nearly undetectable so PCR testing has been recommended. That is great since it means the high dose Gleevec is working for Randy's disease which is very important. Roy's platelet counts once went to 90,000 on 400mg Gleevec when he first started the drug but next clinic visit it was up again. So, look at the trend. Some doctors stop the drug when platelet counts are 50,000 but nowadays many do not stop the drug unless platelet counts are 30,000.
Randy is doing fine, dear Sandy. The hematologic side-effects will subside with time, you have to be patient. And I am sure Randy's doctor is managing well the low ANC and will also manage low platelet counts if necessary. Love, Anjana caregiver to Roy --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
