It is good to hear they will lower the dosage. Rob
On 12/3/06, franw/hope <[EMAIL PROTECTED]> wrote: > > > Hi Group, > For those that have followed our Jonathan, I thought I would share our > good news. > Doc has finally agreed to lower Jon's dosage of Gleevec from 600mg to > 400mg. > It has been 4 wks now and we are going back every 2 weeks for counts > and PCR. > Jon is holding. We have written back and forth a few times with Dr. > Druker concerning > Jon's growth and weight not increasing since his dx. His conclusion was > that Jon was on an extremely high dose and also that he has no > reportings that growth was this slow for other children. > Endocrinologist checks were great. Although the Endo does not feel > comfortable with any growth hormone supplications for Jon. > So it is a question for all the doc's why this is going on. Although > since we have lowered his dosage, I have knowtest his appetite slowly > increasing. > So with time...here's hoping.. and maybe even soon we can lower the > dosage again to what he is suppose to have for his height and weight. > He is 4'11 1/4 and weighs 70 lbs. > Jonathan's feet have been hurting though alot more than usual. Seems > like he's always wanting to soak them and let the water run over them > in the tub. The water is to hot I think.. so that is a sign that other > alternatives need to be tried. I would think it would be less > miserable for him on a lower dosage. But it seemed to had started a > week after the lower dosage was started. He's always had feet > problems...but not as often and not for so long of periods. > Getting complicated. Suggestions are great !! > Blessings > fran > Jonathan dx 10/2003 age 9 > 600mg until 11/06 > now 400 mg > PCR 13/100k > > > > > -- Powered by NewOrleansEmail.Com http://neworleansemail.com --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
