Hi Sue, I am 60 yrs old and was Diag in 1999. I have been in remission for yrs. My DR claims there hasn't been any signs of Phillies for years. I read your message and truer words have never been spoken. I feel exactly as U do. Thanks for making my day.
> From: [EMAIL PROTECTED]> To: [email protected]> Subject: [CMLHope] > Re: Hello to All> Date: Sun, 30 Sep 2007 14:48:08 -0700> > > Hi Pat! I am > new to this site also. My son has CML and is only 11> years old. It is so > comforting to me to hear of all you folks who> have been living with CML for > years. It encourages me that you have> continued to live full lives in spite > of your CML. I hope my son will> live a long full life too!> > I thank God > every day for those who were on the original trials for> CML. I thank God > for the researchers and doctors who so diligently> are trying to cure this > disease. I thank God every day that I still> have my son, and that there is > hope for people with CML!!> > Please don't get discouraged, or feel > embarrased by your smoking> habit, your depression, or your frustration with > the other huge> conflicts in your life. Sometimes we feel we have had all we > can> take, and then we learn we can take a little more than we thought!!> > Please try to keep a positive attitude! You are doing the best you> can, and > every day is a new beginning. If you have failed to quit> smoking before, > that fact won't make you fail again. You are a> survivor, and you are > stong!! You can beat CML and you can beat> smoking!> > Your side effects > sound awful, and I will pray for you today to find a> doctor that will take > the time to listen to you, and start to heal the> whole you. You need > confidence in your doctors so if he is not working> for you, you have to > find someone who will. You have needs beyond> healing your body, you need to > heal you mind and your heart!! I hope> you are seeing a therapist to help > you with all your challenges. And> please don't forget your spiritual self. > You need the peace and joy> and hope that you can find when you let go, and > let God!> > I have never been a very religious person, but you would thnk I > am> with my advice above!! I have found that I need to believe that> someone > else is in control, and will do what is best for me and my> son. I hate > losing that control, I hate letting go, but I have> learned that I have to! > I didn't cause this cancer, and I can't cure> it, so I have to believe that > it is here for a reason, even if only He> knows why right now.> > Pat, we > are all praying for each other, and we understand that we all> need each > other to get through some tough days. Please don't hesitate> to write back.> > > Hugs to you and your family! Sue in MA> > > On Sep 29, 4:50 am, "[EMAIL > PROTECTED]" <[EMAIL PROTECTED]>> wrote:> > Just wanted to check in with > everyone. I am saddened that there is> > such little communication amongst > the group these past months, but I> > guess I shouldn't be one to complain > because I have not participated> > near enough myself. What is going on? I > know there was some conflict> > sometime back and someone started another > group. Has everyone deserted> > this one and went to it or what? Something > happened to our computer> > and I've lost some things but my hubby has been > working relentlessly> > and has recovered some things.> > Anyway, I still > have not reached my zero mark.I am basically at a> > standstill. I am having > other health problems. I think I've told> > everyone already I am now > battling COPD. My appetite decreased so much> > when I started taking > Gleevec and now it is non-existent. I have to> > force down what little I do > eat. I basically live off of cereal and> > soup and as soon as I take 2 or 3 > bites and it hits my stomach, I> > can't even make it to the bathroom. I > have dirrhea constantly. If I> > take my lotomil, then I'm constipated. I > was having so much trouble> > with my stomach, my primary doctor ordered a > cat scan which found> > nothing. I am a smoker and I am constantly quitting > and restarting.> > I've been on and off of the chantix(the quit smoking > pill) and the> > nausea from it was just horrific. None of my doctors can > tell me if> > maybe I shouldn't be taking it with the Gleevec. Not being > able to> > quit and stay quit is causing me severe depression. I know how> > > extremely important it is for me to quit. I'm also going through early> > > menopause which I am told is probably caused by the leukemia and this> > too > has been a terrible experience. I am under so much> > stress...fininacial > problems, a sick husband and a grown son who is> > bipolar just to name a > few. I broke down at my last visit with my cml> > specialist and he wants me > to try the sprycel, wrote me a script which> > I haven't filled yet as my > primary doctor was wanting to see what> > issues I had with my stomach and I > wanted to see what come of that> > before I changed over. I really wanted to > tough it out with the> > Gleevec in spite of all it does to me so I would > have the sprycel to> > turn to should the Gleevec stop working. I'm just a > basket case. I'm> > now sleep deprived. Just cannot get in that 3rd stage of > sleep...I> > don't know if this is related to the COPD or what? My primary > doctor> > who 3 years ago was so wonderful has so many patients now, he > might> > spend 5 minutes with me, walks out while I am still talking, > doesn't> > get my scripts right...he's just in such a hurry all the time. I > just> > feel like giving up sometimes. I would love to hear from all of you> > > and know how you are. I really could use some comforting> > encouragement, > support right now....or just to hear how well your> > situation is going > would give me inspiration. I know I can expect some> > criticism about the > smoking...it won't hurt my feelings...I've heard> > it all already. I've > never asked this question before but are there> > any smokers among the > group, if so would you please email me> > privately. I know if you are a > smoker, you may fear ridicule, but it> > will be kept private between the > two of us...and I'm not fearful of> > ridicule. I know only too well how I > am killing myself. I've already> > been told COPD will probably be my death > sentence rather than CML.> > I've never been a drug user, smoked a little > weed back in the day, not> > a drinker but I have a horrendous addiction to > cigerettes. I'm> > shameful but I'm honest.> > Hope to hear from some of you > soon. If you think of me,please pray for> > me. I'm starting the patch > tomorrow. It is not the first time, but I> > pray this will be the last time > I have to wear them.> > Love, Peace, Hope & Prayers, Pat Reynolds> > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
