Hi Suzieq, I have had pain in the same area off and on for a long time. Last week I couldn't sleep because of it. I found that if I walked the pain would go away, or at least not hurt as bad. I haven't connected it with the Gleevec and think it's potassium, but then that's my guess. I will have to talk it over with the doctor. I just went back on the Gleevec after being taken off about 3 months ago. I was put on Sprycel, but had to many side effects from that so am now back on 400 mg. of Gleevec and we'll see how that goes. I've been fighting CML for 7 years now and all in all have done fairly well. I'm not in remission, but keep trying to get there. I don't know what else to say, except that I don't think it's connected with Gleevec, but then, "Who knows".....Good Luck with everything.....Millie ----- Original Message ----- From: "Suzieq" <[EMAIL PROTECTED]> To: "CMLHope" <[email protected]> Sent: Tuesday, October 16, 2007 12:08 AM Subject: [CMLHope] Re: Hello to All
> > Hi Lori: > I agree with you........to a point.......I feel that we just sometimes > get busy and don't take the time to check our emails like we use to > do......that's how it's been for me.....I was traveling for three > weeks, then came back home but my mom & brother are here, so it's > really hectic with people coming and going, or I'm cooking, cleaning, > or doing laundry & shopping. Always something happening. I'm taking > some time out tonight before I head for bed......everyone else has > already gone, but I needed to unwind a bit first. I have to say > though, when I do check my Inbox, I always read my CML group > messages even though I may not always reply. > > Here's a question for everyone.......does anyone else suffer from > throbbing pains in the legs mostly from the knees down the top of leg > to ankle at night? Sometimes it is so bad that I feel like just > sobbing. Doesn't last a long time........just when I first sit down > and put my feet up or when I first lay down in the bed. I've tried the > heating pad........nothing.......I've stooped to pain relievers or > drugs......don't know what else to do. This just started happening a > couple of months ago.....so I don't know if it's from the disease, > the Gleevec, or something else. > > Thank you, Jeanie, for the wonderful poem. I love poetry and I think > I've read this one a while ago, but had forgotten about it. So, I > printed it off to keep & share. All of you people here are such an > encouragement and a blessing to me. Even though I've never seen any > of you except for a couple who have posted pictures......I feel like > your here with me talking over coffee. > > I go to see my dr. on the 24th and Mom's here so she is going to go > with me. She will be moving up this way in a few months.....needs to > find a good Hem/Onc. for the Auto-Immune of her Platelets. She's > doing so wonderfully right now taking a very low dosage of Prednisone, > hopefully she will stay that way. But, she wants to make sure she can > find a good doctor close to treat her should she relapse. > > Guess I should get off of here and go to bed........I've been getting > up a lot earlier than I normally do since my family's been > here........so will chat later. > > Love to all & Keep Looking Up, > Suzieq > > > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
