That's right! The infusion of 50 units of platelets Jan. 1st was in vain. Within 18 hr I was back at the original very low level. On Jan. 2nd I received a S~L~O~W drip of IVIg. I felt so much better the next day! The petechiae started fading; blood blisters in mouth disappeared. I felt quite a lot more myself. They will assess my blood again today to see if progress has been made or if the IVIg must be reinforced by a second dose. I feel I have been pricked more times than a porcupine on her honeymoon! Angie
"[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: ITP Idiopathic Thrombocytopenia Purpura. People with lupus have been known to start making other auto-antibodies that bind to proteins on the surface of their platelets. Ultimately treat with immunosuppression to control the production of antibodies. They may need to modify your Lupus treatment. In the short term, the doctor may recommend apheresis and intravenous immunoglobulin. Hang in there! On Jan 2, 11:45 pm, ANGELYN ESDERS wrote: > I thank you all MOST sincerely for your encouraging words and excellent > advice. > They think it is a condition called ITP... short for some 87 syllables I > am too tired to spell. > I am most grateful for the immediate replies. I am eager to explore all the > links provided. > Boy-oh-boy! Life never gets dull. > Heartfelt thanks to one and all, > Angie --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
