Hi Livia and yes, I do remember you, I know it hard to make a decision on doing the trials. If I were younger, I would be like you and ready to do pave the way for others with this dreaded CML. Yes, I'm sure we all get frustrated over the insurance and etc. Just this year, I had to change to a Medicare Drug plan because my private insurance said I was no longer eligible because I had met my lifetime limit on drug coverage. This was very confusing to me and not knowing if they would cover my Gleevec and etc and how much they will charge is stressful. So sorry to hear about your friend's passing. I lost my hubby of 42 years 10 years ago to heart complications and I still miss him. We must be strong and wake up each day with courage to fight. I have my faith and God tells us to be of good courage and He will help us fight. Enjoy something everyday, I walk and look at all God has created. I also have a hobby, genealogy, which helps me a lot. Take care of your overall health and get on a good healthful eating plan. All these things help our body to fight. Blessings Livia and hang in there. I hope you can someday have that baby. Jeanie<3 In a message dated 2/5/2008 1:10:19 P.M. Pacific Standard Time, [EMAIL PROTECTED] writes:
Hi guys, I am not sure if you remember, but I had a dilemma to decide if to enter a trial and if yes, which trial vaccine or Interferon. Anyway, last year my insurance approved me for the trial, but I took time to make a decision. I decided this year in January to proceed with a trial. We all met, with my doc, his coordinator, we all were excited and unfortunately this year my insurance company denied it. I was sooooo disappointed! I do not know how about you guys, but I am sometimes losing it especially when it comes to insurance companies, thinking about changing my job, traveling The main purpose of this trial is that I would like to become pregnant. So, with the hope that the trial goes well and my CML is not detectable, they can stop Gleevec and I try to have a baby (safe time being off Gleevec). But the second reason for me is to try to achieve negative PCR results and participate in this study to help our medical research. I was secretly hoping for a Gleevec+Interferon combo, but as you know I would be randomized. Now, my FISH is negative, quantitative PCR says 0.8/1000, however, 9 months ago it used to be 0.1/1000 THIS IS WERE WE WERE TOTALLY EXCITED and where my oncologist offered me to attend a trial 6 months ago it was 0.4/1000, 3 month ago 0.4/1000 - so stable, and this week it was 0.8/1000. My doc says that it is still very stable, very low result. I am sure that there is no set pattern of resistance but I kind of have this inner bad feeling that I do not like it. As long as PCR was going down or remained stable, I was o.k., but as soon as it started to move upward, I am anxious. Anyway, I just wanted to update you on my situation. This weekend has not been a good one, because my friend Ivana, who was suffering from ALL passed away on Friday. She has been diagnosed three years ago. She is from Slovakia (country were I was born). We were in touch via emails, encouraged each other, helped each other and I lost her. It is so hard, because I have so many emails from her, any time I went to Slovakia I visited her and I was really hoping that she will be o.k. She had a bone marrow transplant done. Her sister was a perfect match, then she relapsed after a year from transplant and the last two years she has been fighting on maintenance chemo and I am not sure what else she has been taking. Her results were up and down, so I was hoping that one day her bone marrow will start working properly Very sad news, she was only 29 years old, like me. She was engaged and postponing her wedding, hoping that one day Thanks I am open to any feedback J Hugs to all of you and all the best. **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp003000000025 48) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
