Hello there: Just wanted to say "welcome to the greatest support group"......sorry about your diagnosis.
How well I remember those first six months after my dx'es..............I spent a great deal of my days laying on the sofa or in the bathroom. I know what you mean about feeling like "crap"......but, I for one can tell you that, in my circumstance, I did begin to feel much better after some time. I was dx'ed back in Jan. of 2004, begin Gleevec about three weeks after. 400mgs. is what I've always taken & it begin to work immediately. I got on-line and learned everything possible to know about CML & leukemia in general as well as Gleevec. My doctors did not tell me a thing about what to expect..........other than to drink lots of water to flush something, don't remember what it was, out of my system. :-). I remember how badly my eyes were swollen each morning......I used ice packs, cold wet tea bags, you name it.........today, I still have a bit of swelling mostly in the upper lid of the right eye.....but nothing like in the beginning. I think all of us here have gone through most all of the side affects from the Gleevec at one time or another.......for me, they come and go but not as severe as they were at first. The best list of side affects I found was sent to me from Novartis........more extensive list than what you get with your prescription. I decided to take control of my own life.......added certain vitamins daily & over a period of time, most days, I feel better than I have in a long time. I still have an occasional day where I spend it just "laying around" & I've learned that there are just some things I can't do as well as I did before CML. You learn to adjust....but don't give up. Keep fighting....because it does get better. God Bless You & Keep Looking Up, Suzieq --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
