this is a test On Feb 23, 4:25 pm, barnowl <[EMAIL PROTECTED]> wrote: > Kellyelise, > > You might have already received your answer from people with more > experience. I am a part of this group because my niece has/had CML and > just recently had a bone marrow transplant in Seattle and is under Dr. > Druker's care. I saw this link and wondered if it would help. While on > gleevac and on spycel, she did not work. She was resistant to these > treatments, so BMT was her only option. Check out this site for the > SSD benefits.http://library.findlaw.com/1999/Sep/1/126911.html > > Good-Luck, > > Leslie > > On Feb 22, 9:33 pm, Joy <[EMAIL PROTECTED]> wrote: > > > Kelly, > > My husband has had CML for almost 4 years now and never missed a day > > at work. He has always had a good attitude and been very positive. > > He walks every day and when he was diagnosed had some trouble with > > rashes and a little swelling of the eyelids, some joint pain, but > > those things are doing much better now. Give yourself some time and > > you will find that you will improve in all areas. Just be so very > > thankful that the Gleevec came along when it did.....our oncologist > > would say there is not a relationship to your dad's cancer and your > > CML. > > > I promise you it will get better and as for the questions regarding > > SS, please contact the Lukemia and Lymphoma Society and they will be > > more than happy to answer your questions, anything that you need. > > They are wonderful....they will help you find the chapter in your > > area. > > > You have been through a trauma and you will come out fine, just give > > it some time. Blessings to you. We will be praying for you. Let us > > know how you are doing ! > > > In the fight together, > > Jerry and Joy > > > On Feb 19, 8:24 am, kellyelise <[EMAIL PROTECTED]> wrote: > > > > I went to the ER in October for chest pain. They found an elevated > > > white count. After several bumblings with my PCP, I was referred to an > > > heme/onc specialist. Bloodwork Nov 14. Bone marrow bx Dec 14. > > > Treatment started Feb 8 - with Gleevec. Okay, I feel terrible. My > > > eyelids are swollen as well as my hands, feet, legs, everything! I am > > > so tired and I hurt all over. Is this normal? Do these symptoms start > > > to dissipate? I must mention that my abnormal white count was detected > > > at the same time I was living with my parents helping care for my > > > father with pancreatic Ca. My father died Nov 27. I was told there is > > > no connection whatsoever to the pancreatic Ca and the CML. Prior to my > > > parent's generation - there was absolutely no evidence of cancer in my > > > family. Two uncles on maternal side with colon Ca (both uncles are in > > > their 80s and faring reasonably well having beat the Ca) and then my > > > father. > > > > As of last Friday - I went to a psychiatrist as I was having trouble > > > functioning emotionally (anxiety/depression). I can only attribute > > > this to a delayed response to what I have been through the last few > > > months. > > > > I have a very demanding, stressful job. When I finish work, I have > > > nothing left. I am completely wiped out. The psychiatrist put me on 8 > > > weeks of medical leave. My disability insurance WILL NOT keep the > > > wolves from the door. But, I refuse to worry about it. My employer has > > > already called me and "threatened" my job. > > > > My question - with a diagnosis of CML - can you qualify for SSD > > > (social security disability)? I already feel as though my quality of > > > life is crap as I can't even go to the grocery store without being > > > totally wiped out. > > > > Can anyone offer some advice, facts, reference sites? I would greatly > > > appreciate it.
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